Chere T. Chapman
Halifax, NS, Canada
Last Updated: 09/26/2026
Save publications for later
Sign Up
Not sure about your diagnosis?
Check Your Symptoms
Found 11 publications
Outcome strategies for clinical trials in Neuropaediatric rare diseases.
Journal: Neuroscience applied
Published: November 28, 2025
Clinician and Researcher Experiences with Goal Attainment Scaling: A Qualitative Study on Opportunities and Challenges for Personalized Outcome Assessments.
Journal: Patient related outcome measures
Published: May 06, 2025
Use of Basket Trials to Solve Sleep Problems in Patients with Rare Diseases.
Journal: Clocks & sleep
Published: September 17, 2024
Novel approaches to measuring cognition in individuals with severe to profound functional impairment: A pilot study in SCN2A-related disorder.
Journal: Epilepsy & behavior : E&B
Published: April 08, 2024
The Feasibility of Personalized Endpoints in Assessing Treatment Outcomes for Rare Diseases: A Pilot Study of Goal Attainment Scaling in SCN2A-Associated Developmental Epileptic Encephalopathy.
Journal: Value in health : the journal of the International Society for Pharmacoeconomics and Outcomes Research
Published: March 25, 2024
Patient-advocate-led global coalition adapting fit-for-purpose outcomes measures to assure meaningful inclusion of DEEs in clinical trials.
Journal: Therapeutic advances in rare disease
Published: January 03, 2024
FDA Patient-Focused Drug Development Guidances: Considerations for Trial Readiness in Rare Developmental and Epileptic Encephalopathies
Journal: Neurology
Published: January 02, 2024
What does better look like in individuals with severe neurodevelopmental impairments? A qualitative descriptive study on SCN2A-related developmental and epileptic encephalopathy.
Journal: Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation
Published: October 10, 2023
A systematic review of goal attainment scaling implementation practices by caregivers in randomized controlled trials.
Journal: Journal of patient-reported outcomes
Published: May 01, 2023
The GOAL-Hēm journey: Shared decision making and patient-centred outcomes.
Journal: Haemophilia : the official journal of the World Federation of Hemophilia
Published: February 14, 2022
The Symptoms Targeted for Monitoring in a Web-Based Tracking Tool by Caregivers of People With Dementia and Agitation: Cross-Sectional Study.
Journal: Journal of medical Internet research
Published: January 15, 2019
Showing 1-11 of 11
Last Updated: 09/26/2026