Last Updated: 09/26/2026
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Found 19 publications
Building the foundation for a community-generated national research blueprint for inherited bleeding disorders: research priorities in health services; diversity, equity, and inclusion; and implementation science.
Journal: Expert review of hematology
Published: March 15, 2023
Real-world cost estimates of initiating emicizumab in US patients with haemophilia A.
Journal: Haemophilia : the official journal of the World Federation of Hemophilia
Published: December 23, 2020
Evolution of haemophilia integrated care in the era of gene therapy: Treatment centre's readiness in United States and EU.
Journal: Haemophilia : the official journal of the World Federation of Hemophilia
Published: December 16, 2020
Real-world use of emicizumab in patients with haemophilia A: Bleeding outcomes and surgical procedures.
Journal: Haemophilia : the official journal of the World Federation of Hemophilia
Published: January 27, 2020
Women and girls with heavy menstrual bleeding and inherited bleeding disorders: A call to action for the Haemophilia Treatment Centre Nurse.
Journal: Haemophilia : the official journal of the World Federation of Hemophilia
Published: January 23, 2020
Correlations between patient-reported outcomes and self-reported characteristics in adults with hemophilia B and caregivers of children with hemophilia B: analysis of the B-HERO-S study.
Journal: Patient related outcome measures
Published: June 12, 2019
Mild-severe hemophilia B impacts relationships of US adults and children with hemophilia B and their families: results from the B-HERO-S study.
Journal: Patient related outcome measures
Published: May 02, 2019
Reliability and validity of patient-reported outcome instruments in US adults with hemophilia B and caregivers in the B-HERO-S study.
Journal: European journal of haematology
Published: May 14, 2018
Impact of hemophilia B on quality of life in affected men, women, and caregivers-Assessment of patient-reported outcomes in the B-HERO-S study.
Journal: European journal of haematology
Published: February 23, 2018
Management of intracranial hemorrhage in severe factor V deficiency and definitive treatment with liver transplantation.
Journal: Pediatric transplantation
Published: November 22, 2017
Catheter-Related Venous Thrombosis in Hospitalized Pediatric Patients with Inflammatory Bowel Disease: Incidence, Characteristics, and Role of Anticoagulant Thromboprophylaxis with Enoxaparin.
Journal: The Journal of pediatrics
Published: November 05, 2017
Principles and theory guiding development and delivery of patient education in disorders of thrombosis and hemostasis: Reviewing the current literature.
Journal: Research and practice in thrombosis and haemostasis
Published: May 11, 2017
Last Updated: 09/26/2026