Claude Messiaen

Paris, France

Last Updated: 09/26/2026

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Found 15 publications

Characteristics of Patients with Myasthenia Gravis in the French Rare Disease Registry.

Characteristics of Patients with Myasthenia Gravis in the French Rare Disease Registry.

Journal: European journal of neurology

Published: July 08, 2025

Prevalence of pediatric neuromuscular disorders in the Southwest region of France.

Prevalence of pediatric neuromuscular disorders in the Southwest region of France.

Journal: Neuromuscular disorders : NMD

Published: May 27, 2025

New insights into epidemiological data and impact of the COVID-19 pandemic on IgA vasculitis in children and adults: a French nationwide cohort.

New insights into epidemiological data and impact of the COVID-19 pandemic on IgA vasculitis in children and adults: a French nationwide cohort.

Journal: Rheumatology international

Published: May 30, 2023

Overview of patients' cohorts in the French National rare disease registry.

Overview of patients' cohorts in the French National rare disease registry.

Journal: Orphanet journal of rare diseases

Published: June 10, 2022

Impact of the COVID-19 pandemic on the care of rare and undiagnosed diseases patients in France: a longitudinal population-based study.

Impact of the COVID-19 pandemic on the care of rare and undiagnosed diseases patients in France: a longitudinal population-based study.

Journal: Orphanet journal of rare diseases

Published: May 21, 2022

The ongoing French BaMaRa-BNDMR cohort: implementation and deployment of a nationwide information system on rare disease.

The ongoing French BaMaRa-BNDMR cohort: implementation and deployment of a nationwide information system on rare disease.

Journal: Journal of the American Medical Informatics Association : JAMIA

Published: August 09, 2021

Age at diagnosis in patients with chronic congenital endocrine conditions: a regional cohort study from a reference center for rare diseases.

Age at diagnosis in patients with chronic congenital endocrine conditions: a regional cohort study from a reference center for rare diseases.

Journal: Orphanet journal of rare diseases

Published: June 09, 2021

10 years of CEMARA database in the AnDDI-Rares network: a unique resource facilitating research and epidemiology in developmental disorders in France.

10 years of CEMARA database in the AnDDI-Rares network: a unique resource facilitating research and epidemiology in developmental disorders in France.

Journal: Orphanet journal of rare diseases

Published: December 14, 2020

Healthcare trajectory of children with rare bone disease attending pediatric emergency departments.

Healthcare trajectory of children with rare bone disease attending pediatric emergency departments.

Journal: Orphanet journal of rare diseases

Published: May 21, 2019

Federating patients identities: the case of rare diseases.

Federating patients identities: the case of rare diseases.

Journal: Orphanet journal of rare diseases

Published: December 21, 2017

Prevalence of fibrodysplasia ossificans progressiva (FOP) in France: an estimate based on a record linkage of two national databases.

Prevalence of fibrodysplasia ossificans progressiva (FOP) in France: an estimate based on a record linkage of two national databases.

Journal: Orphanet journal of rare diseases

Published: April 11, 2017

Management of rare diseases of the Head, Neck and Teeth: results of a French population-based prospective 8-year study.

Management of rare diseases of the Head, Neck and Teeth: results of a French population-based prospective 8-year study.

Journal: Orphanet journal of rare diseases

Published: March 30, 2017

Showing 1-12 of 15

Last Updated: 09/26/2026