Elin H. Davies

Gwenfro Technology Park
Wrexham, WLS, United Kingdom

Last Updated: 09/26/2026

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Found 50 publications

Feasibility, validation and application of digital tools for remote monitoring in neuromuscular diseases: the DT4RD protocol.

Feasibility, validation and application of digital tools for remote monitoring in neuromuscular diseases: the DT4RD protocol.

Journal: BMJ open

Published: August 27, 2026

Transitional Life Events in Friedreich Ataxia: Differential Age at Onset Perspectives.

Transitional Life Events in Friedreich Ataxia: Differential Age at Onset Perspectives.

Journal: Cerebellum (London, England)

Published: March 23, 2026

A Pathway to High Quality Clinical Trials in IgA Vasculitis Nephritis: Meeting Proceedings From a Multiprofessional International Collaborative Workshop.

A Pathway to High Quality Clinical Trials in IgA Vasculitis Nephritis: Meeting Proceedings From a Multiprofessional International Collaborative Workshop.

Journal: Kidney international reports

Published: October 30, 2025

The lived experience of adolescents with X-linked hypophosphataemia treated with burosumab at end of skeletal growth: a mixed-methods analysis.

The lived experience of adolescents with X-linked hypophosphataemia treated with burosumab at end of skeletal growth: a mixed-methods analysis.

Journal: PloS one

Published: September 24, 2025

Adolescents' experience of living with X-linked hypophosphataemia (XLH): a mixed-methods analysis of those who continued and discontinued burosumab treatment after end of skeletal growth.

Adolescents' experience of living with X-linked hypophosphataemia (XLH): a mixed-methods analysis of those who continued and discontinued burosumab treatment after end of skeletal growth.

Journal: Orphanet journal of rare diseases

Published: September 04, 2025

Patient-reported, psychosocial and health economic outcomes in mild to moderate Friedreich's ataxia: baseline results of the PROFA study.

Patient-reported, psychosocial and health economic outcomes in mild to moderate Friedreich's ataxia: baseline results of the PROFA study.

Journal: The Lancet regional health. Europe

Published: August 06, 2025

Remote Assessment of Ataxia Severity in SCA3 Across Multiple Centers and Time Points.

Remote Assessment of Ataxia Severity in SCA3 Across Multiple Centers and Time Points.

Journal: Annals of clinical and translational neurology

Published: July 29, 2025

Mobile health interventions to improve adherence to oral anticoagulant treatment: A systematic review and critical analysis.

Mobile health interventions to improve adherence to oral anticoagulant treatment: A systematic review and critical analysis.

Journal: British journal of clinical pharmacology

Published: February 19, 2025

Comparability, acceptability and longitudinal adherence with digital emPHasis-10 in pulmonary arterial hypertension.

Comparability, acceptability and longitudinal adherence with digital emPHasis-10 in pulmonary arterial hypertension.

Journal: The European respiratory journal

Published: January 29, 2025

Measure selection for an electronic patient-reported outcome (ePRO) system for CAR T-cell therapy patients: a modified Delphi consensus study.

Measure selection for an electronic patient-reported outcome (ePRO) system for CAR T-cell therapy patients: a modified Delphi consensus study.

Journal: EClinicalMedicine

Published: November 07, 2024

Case example of a female solo sailor competing in the Vendée Globe reveals extraordinary biological demands.

Case example of a female solo sailor competing in the Vendée Globe reveals extraordinary biological demands.

Journal: Journal of sports sciences

Published: June 11, 2024

Personalized care of paediatric drug-resistant epilepsy in Africa: A single-centre pilot study utilizing mobile health and genetic testing.

Personalized care of paediatric drug-resistant epilepsy in Africa: A single-centre pilot study utilizing mobile health and genetic testing.

Journal: Developmental medicine and child neurology

Published: June 10, 2024

Showing 1-12 of 50

Last Updated: 09/26/2026