Elizabeth J. Vroom
Veenendaal, UT, Netherlands
Last Updated: 09/26/2026
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Found 42 publications
Screening cognitive and academic problems in Duchenne Muscular Dystrophy: Validity and reliability of the Kempenhaeghe Learning Questionnaire.
Journal: Journal of neuromuscular diseases
Published: May 30, 2026
The FAIR journey of a patient-driven registry: Reflections and practical solutions from the Duchenne Data Platform FAIRification experience.
Journal: Journal of neuromuscular diseases
Published: October 01, 2025
Screening for brain-related comorbidities in Duchenne muscular dystrophy: Construction, reliability, and validity of the BIND screener.
Journal: Developmental medicine and child neurology
Published: June 26, 2025
Development of the accredited duchenne centers program, a global program to achieve uniform and up-to-date care for all people living with duchenne muscular dystrophy.
Journal: Orphanet journal of rare diseases
Published: March 10, 2025
Factors affecting desired participation in transition to an adult life with Duchenne muscular dystrophy (DMD).
Journal: Journal of neuromuscular diseases
Published: March 04, 2025
Towards harmonization of clinical tools for assessing Brain Involvement in Dystrophinopathies (BIND); report of four expert workshops: Newcastle, Leiden, Rome, Paris.
Journal: Neuromuscular disorders : NMD
Published: August 27, 2024
The Dutch Dystrophinopathy Database: A National Registry with Standardized Patient and Clinician Reported Real-World Data.
Journal: Journal of neuromuscular diseases
Published: July 20, 2024
Moving Beyond the 2018 Minimum International Care Considerations for Osteoporosis Management in Duchenne Muscular Dystrophy (DMD): Meeting Report from the 3rd International Muscle-Bone Interactions Meeting 7th and 14th November 2022.
Journal: Journal of neuromuscular diseases
Published: November 19, 2023
Harmonization of outcomes in epidermolysis bullosa: report of the Core Outcome Sets for Epidermolysis Bullosa (COSEB) kick-off meeting.
Journal: The British journal of dermatology
Published: August 07, 2023
Patient reported outcome measure for upper limb in Duchenne muscular dystrophy: correlation with PUL2.0.
Journal: Neuromuscular disorders : NMD
Published: April 18, 2023
The Dilemma of Choice for Duchenne Patients Eligible for Exon 51 Skipping The European Experience.
Journal: Journal of neuromuscular diseases
Published: March 13, 2023
A Comparison of Caregiver and Patient Preferences for Treating Duchenne Muscular Dystrophy.
Journal: The patient
Published: January 23, 2022
Last Updated: 09/26/2026