Last Updated: 09/26/2026
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Found 64 publications
Reimagining the Referral to Wellness Services for Youth with Chronic Conditions as a Conversation: A Human-Centered Approach.
Journal: Healthcare (Basel, Switzerland)
Published: May 01, 2026
Progression of skin-limited pediatric-onset discoid lupus erythematosus to diagnosis of systemic lupus erythematosus: Results of a multicenter, retrospective cohort study.
Journal: Journal of the American Academy of Dermatology
Published: December 21, 2025
Progression of skin-limited pediatric-onset discoid lupus erythematosus to diagnosis of systemic lupus erythematosus: results of a multicenter, retrospective cohort study.
Journal: Journal of the American Academy of Dermatology
Published: December 21, 2025
Sex Differences in PROMIS Pediatric Depressive Symptoms, Anxiety, and Psychological Stress Among Children and Adolescents Living With Pediatric Rheumatic Diseases.
Journal: The Journal of rheumatology
Published: November 11, 2025
Cumulative Social Disadvantage and Disease Activity in Juvenile Idiopathic Arthritis: A Childhood Arthritis and Rheumatology Research Alliance Registry Study.
Journal: Arthritis care & research
Published: October 10, 2025
Congruence Between Child Self-Reported and Caregiver-Proxy-Reported Health-Related Quality of Life in Children With Juvenile Idiopathic Arthritis and Systemic Lupus Erythematosus.
Journal: The Journal of rheumatology
Published: October 08, 2025
Race and Household Income Are Associated With Disease Outcomes in Pediatric Patients With Antineutrophil Cytoplasmic Antibody-Associated Vasculitis Hospitalized in the United States.
Journal: Arthritis care & research
Published: July 03, 2025
Disease activity trajectories in paediatric lupus and associations with socioeconomic factors and patient-reported pain.
Journal: Lupus science & medicine
Published: February 13, 2025
Voices of Hope: Leveraging Think-Aloud Cognitive Interviews to Develop a Hope Assessment Tool for Young People Living with Chronic Health Conditions.
Journal: Children (Basel, Switzerland)
Published: October 23, 2024
Healthcare Utilization Among Youth with Chronic Illness Receiving Care at a Large Urban Academic Healthcare System.
Journal: Healthcare (Basel, Switzerland)
Published: October 11, 2024
Evaluating anchor variables and variation in meaningful score differences for PROMIS® Pediatric measures in children and adolescents living with a rheumatic disease.
Journal: Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation
Published: September 29, 2024
Development of CARRA/PReS-endorsed consensus Core and Expanded Datasets in childhood-onset systemic lupus erythematosus for international registry-based research.
Journal: Annals of the rheumatic diseases
Published: August 06, 2024
Last Updated: 09/26/2026