Evelien S. Van Hoorn
Rotterdam, ZH, Netherlands
Last Updated: 09/26/2026
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Found 13 publications
How to develop care pathways: a practical overview of methodological approaches.
Journal: BMJ health & care informatics
Published: June 02, 2026
The Haemophilia Health Journey: Experiences and Unmet Care Needs of Caregivers and Their Young Children.
Journal: Haemophilia : the official journal of the World Federation of Hemophilia
Published: March 13, 2026
Facilitators and Barriers of the Use of Prognostic Models for Clinical Decision Making in Acute Neurologic Care: A Systematic Review.
Journal: Medical decision making : an international journal of the Society for Medical Decision Making
Published: June 29, 2025
Experiences and Needs Regarding Information Provision in Children With Haemophilia: A Qualitative Study on Caregivers' and Healthcare Providers' Perspectives.
Journal: Haemophilia : the official journal of the World Federation of Hemophilia
Published: March 04, 2025
Psychometrics of patient-reported outcomes measurement information system in von Willebrand disease, inherited platelet function disorders, and rare bleeding disorders.
Journal: Research and practice in thrombosis and haemostasis
Published: March 01, 2024
Patient-relevant health outcomes for von Willebrand disease, platelet function disorders, and rare bleeding disorders: a Delphi study.
Journal: Research and practice in thrombosis and haemostasis
Published: May 09, 2023
Psychometrics of the patient-reported outcomes measurement information system measures in hemophilia: the applicability of the pediatric item banks.
Journal: Research and practice in thrombosis and haemostasis
Published: May 02, 2023
Value-Based Integrated Care: A Systematic Literature Review.
Journal: International journal of health policy and management
Published: March 20, 2023
The ethics of gene therapy for hemophilia: a narrative review.
Journal: Journal of thrombosis and haemostasis : JTH
Published: October 17, 2022
Harmonizing patient-reported outcome measurements in inherited bleeding disorders with PROMIS.
Journal: Haemophilia : the official journal of the World Federation of Hemophilia
Published: July 11, 2022
Generic PROMIS item banks in adults with hemophilia for patient-reported outcome assessment: Feasibility, measurement properties, and relevance.
Journal: Research and practice in thrombosis and haemostasis
Published: July 28, 2021
Last Updated: 09/26/2026