Gabriele Muller
Dresden, SN, Germany
Last Updated: 09/26/2026
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Found 36 publications
From Broad Consent to Patient Engagement: A Framework for Consent Management and Study Oversight.
Journal: Studies in health technology and informatics
Published: September 03, 2025
Quality of Life of Patients With Multi-Organ Autoimmune Disease and Its Relationship to Patient-Centered Care: Protocol for a Longitudinal Cohort Study.
Journal: JMIR research protocols
Published: May 20, 2025
How to Evaluate a Regional Telemedical Care Network Focusing on Critically Ill Children? Results from the Consensus-Based Development of an Evaluation Design.
Journal: Children (Basel, Switzerland)
Published: January 14, 2025
Decentralized rare disease studies in Germany: first results and hurdles of secondary use of patient data.
Journal: BMC medical informatics and decision making
Published: January 13, 2025
The cost of the diagnostic odyssey of patients with suspected rare diseases.
Journal: Orphanet journal of rare diseases
Published: November 08, 2024
Secondary use of patient data within decentralized studies using the example of rare diseases in Germany: A data scientist's exploration of process and lessons learned.
Journal: Digital health
Published: March 10, 2024
Nationally standardized broad consent in practice: initial experiences, current developments, and critical assessment
Journal: Bundesgesundheitsblatt, Gesundheitsforschung, Gesundheitsschutz
Published: December 14, 2023
Evaluation of the telemedical health care network "SAFE BIRTH" for pregnant women at risk, premature and sick newborns and their families: study protocol of a cluster-randomized controlled stepped-wedge trial.
Journal: BMC health services research
Published: December 05, 2023
Transition for adolescents with a rare disease: results of a nationwide German project.
Journal: Orphanet journal of rare diseases
Published: September 22, 2022
Treatment practice of patients with Parkinson's disease in Saxony : A secondary data-based analysis of utilization in the observation period 2011-2019
Journal: Der Nervenarzt
Published: January 24, 2022
Feasibility of a Multimodal Telemedical Intervention for Patients with Parkinson's Disease-A Pilot Study.
Journal: Journal of clinical medicine
Published: January 15, 2022
Data protection-compliant broad consent for secondary use of health care data and human biosamples for (bio)medical research: Towards a new German national standard.
Journal: Journal of biomedical informatics
Published: October 31, 2021
Last Updated: 09/26/2026