Hanna Skrobanski
8th Floor, 84 Theobalds Road
London, ENG WC1X8NL, United Kingdom
London, ENG WC1X8NL, United Kingdom
Last Updated: 09/26/2026
Save publications for later
Sign Up
Not sure about your diagnosis?
Check Your Symptoms
Found 20 publications
Caregiver burden associated with caring for individuals with tuberous sclerosis complex-associated seizures: A descriptive, non-interventional survey in Sweden.
Journal: Epilepsy & behavior reports
Published: November 04, 2024
Appropriateness of the EQ-5D-5L in capturing health-related quality of life in individuals with transfusion-dependent β-thalassemia: a mixed methods study.
Journal: Health and quality of life outcomes
Published: December 15, 2023
A qualitative study to explore the burden of disease in activated phosphoinositide 3-kinase delta syndrome (APDS).
Journal: Orphanet journal of rare diseases
Published: November 22, 2023
Caregivers' Perspectives on the Impact of Cannabidiol (CBD) Treatment for Dravet and Lennox-Gastaut Syndromes: A Multinational Qualitative Study.
Journal: Journal of child neurology
Published: July 17, 2023
Shared decision-making and the caregiver experience in tuberous sclerosis complex: results from a UK survey.
Journal: Orphanet journal of rare diseases
Published: January 24, 2023
The Burden of Caring for Individuals with Tuberous Sclerosis Complex (TSC) Who Experience Epileptic Seizures: A Descriptive UK Survey.
Journal: PharmacoEconomics - open
Published: January 05, 2023
Correction to: Demographic and psychological predictors of community pharmacists' cancer-related conversations with patients: a cross-sectional analysis and survey study.
Journal: BMC health services research
Published: March 16, 2022
Symptoms and impacts of aromatic L-amino acid decarboxylase (AADC) deficiency among individuals with different levels of motor function.
Journal: Orphanet journal of rare diseases
Published: October 03, 2021
Demographic and psychological predictors of community pharmacists' cancer-related conversations with patients: a cross-sectional analysis and survey study.
Journal: BMC health services research
Published: August 31, 2021
Patient and Caregiver Health State Utilities in Tuberous Sclerosis Complex.
Journal: PharmacoEconomics - open
Published: July 27, 2021
The impact of caring for an individual with aromatic l-amino acid decarboxylase (AADC) deficiency: a qualitative study and the development of a conceptual model.
Journal: Current medical research and opinion
Published: July 14, 2021
Symptoms and impact of aromatic l-amino acid decarboxylase (AADC) deficiency: a qualitative study and the development of a patient-centred conceptual model.
Journal: Current medical research and opinion
Published: May 27, 2021
Last Updated: 09/26/2026