Heidi Johansen
Nesoddtangen, 1450, Norway
Last Updated: 09/26/2026
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Found 24 publications
Exploring patient experiences of pain fatigue and physical activity in syndromic heritable thoracic aortic disease using mixed methods.
Journal: Scientific reports
Published: February 05, 2025
Quality of life in people with syndromic heritable thoracic aortic disease and their relatives: a qualitative interview based study.
Journal: Orphanet journal of rare diseases
Published: February 19, 2024
Fatigue in patients with syndromic heritable thoracic aortic disease: a systematic review of the literature and a qualitative study of patients' experiences and perceptions.
Journal: Orphanet journal of rare diseases
Published: November 17, 2022
Work participation in adults with rare genetic diseases - a scoping review.
Journal: BMC public health
Published: November 09, 2022
Education and employment status among adults with Loeys-Dietz syndrome and vascular Ehlers-Danlos syndrome in Norway, a questionnaire based study.
Journal: PloS one
Published: June 21, 2022
The seventh survey of the Tromsø Study (Tromsø7) 2015-2016: study design, data collection, attendance, and prevalence of risk factors and disease in a multipurpose population-based health survey.
Journal: Scandinavian journal of public health
Published: May 05, 2022
Adults with Loeys-Dietz syndrome and vascular Ehlers-Danlos syndrome: A cross-sectional study of life satisfaction.
Journal: Journal of rehabilitation medicine
Published: October 27, 2021
Experienced fatigue in people with rare disorders: a scoping review on characteristics of existing research.
Journal: Orphanet journal of rare diseases
Published: June 16, 2021
Adults with Loeys-Dietz syndrome and vascular Ehlers-Danlos syndrome: a cross-sectional study of patient experiences with physical activity.
Journal: Disability and rehabilitation
Published: September 11, 2020
Physical fitness and activity level in Norwegian adults with achondroplasia.
Journal: American journal of medical genetics. Part A
Published: May 04, 2020
Physical exercise for people with hereditable thoracic aortic disease. A study of patient perspectives.
Journal: Disability and rehabilitation
Published: December 19, 2019
A scoping review presenting a wide variety of research on paediatric and adolescent patients with Marfan syndrome.
Journal: Acta paediatrica (Oslo, Norway : 1992)
Published: September 06, 2019
Last Updated: 09/26/2026