Helen M. Leonard
15 Hospital Avenue
Nedlands, WA 6009, Australia
Nedlands, WA 6009, Australia
Last Updated: 09/26/2026
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Found 240 publications
Building genetic healthcare together: an Australian co-production three-phase mixed-methods research protocol with people with intellectual disability.
Journal: BMJ open
Published: July 10, 2026
Effectiveness and Cost-Effectiveness of Models of Healthcare for People With Intellectual Disability in Australia: A Scoping Review.
Journal: Journal of intellectual disability research : JIDR
Published: January 05, 2026
From QI-disability to QID-12: creating a brief proxy-report measure of quality of life for children with intellectual disability.
Journal: Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation
Published: December 15, 2025
Associations between EEG measures and clinical severity in CDKL5 deficiency disorder.
Journal: Clinical neurophysiology : official journal of the International Federation of Clinical Neurophysiology
Published: December 04, 2025
Addressing the challenges of intellectual disability identification for health policy and research in Australia.
Journal: Frontiers in psychiatry
Published: September 12, 2025
Content Validation of the Communication Inventory Disability-Observer Reported (CID-OR).
Journal: Journal of child neurology
Published: September 03, 2025
Beyond Seizures as an Outcome Measure: A Global Severity Scoring System for CDKL5 Deficiency Disorder.
Journal: Brain and behavior
Published: July 21, 2025
Development and initial validation of the Communication Inventory Disability - Observer Reported (CID-OR): a measure of communication in CDKL5 deficiency disorder.
Journal: Journal of patient-reported outcomes
Published: May 08, 2025
Parent/caregiver perspectives of meaningful improvement in functional domains for people with CDKL5 deficiency disorder: a mixed-methods study.
Journal: Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation
Published: April 30, 2025
The application of population data linkage to capture sibling health outcomes among children and young adults with neurodevelopmental conditions. A scoping review.
Journal: International journal of population data science
Published: March 21, 2025
Last Updated: 09/26/2026