Homira Osman

Ottawa, ON, Canada

Last Updated: 09/26/2026

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Found 16 publications

Advancing neuromuscular disease research through real-world data: Challenges and lessons learned.

Advancing neuromuscular disease research through real-world data: Challenges and lessons learned.

Journal: Journal of neuromuscular diseases

Published: June 09, 2026

Implementation of a neuromuscular clinical trial network: a rare disease model for enhancing clinical trial readiness, capacity, and access in Canada.

Implementation of a neuromuscular clinical trial network: a rare disease model for enhancing clinical trial readiness, capacity, and access in Canada.

Journal: Orphanet journal of rare diseases

Published: March 11, 2026

Strengthening clinical capacity in spinal muscular atrophy: Developing and implementing training on clinical outcome assessments.

Strengthening clinical capacity in spinal muscular atrophy: Developing and implementing training on clinical outcome assessments.

Journal: Journal of neuromuscular diseases

Published: January 21, 2026

Exploring the impact of myotonia on daily functioning in myotonic dystrophy: a patient-reported survey.

Exploring the impact of myotonia on daily functioning in myotonic dystrophy: a patient-reported survey.

Journal: BMC neurology

Published: December 19, 2025

2nd NMD4C basic research summer school on promoting standardized protocols to advance translational research in neuromuscular disorders.

2nd NMD4C basic research summer school on promoting standardized protocols to advance translational research in neuromuscular disorders.

Journal: Journal of neuromuscular diseases

Published: December 19, 2025

Transition to adulthood in Duchenne Muscular Dystrophy: a systematic review with narrative synthesis on health systems, policies, and the role of health care providers.

Transition to adulthood in Duchenne Muscular Dystrophy: a systematic review with narrative synthesis on health systems, policies, and the role of health care providers.

Journal: Frontiers in public health

Published: December 19, 2025

Building capacity for patient-engagement in neuromuscular disease research: A network project.

Building capacity for patient-engagement in neuromuscular disease research: A network project.

Journal: Journal of neuromuscular diseases

Published: December 16, 2025

Conference proceedings from the Western Canadian Neuromuscular Conference (WCNMC) - September 27-29, 2024, Calgary, Canada.

Conference proceedings from the Western Canadian Neuromuscular Conference (WCNMC) - September 27-29, 2024, Calgary, Canada.

Journal: Journal of neuromuscular diseases

Published: October 21, 2025

Financial Toxicity and Its Determinants in Individuals Living With Inherited and Acquired Neuromuscular Disorders: The BIND Study.

Financial Toxicity and Its Determinants in Individuals Living With Inherited and Acquired Neuromuscular Disorders: The BIND Study.

Journal: Neurology

Published: August 20, 2025

Counting the Cost: The Hidden Financial Realities of Neuromuscular Disease Through Patient and Family Perspectives.

Counting the Cost: The Hidden Financial Realities of Neuromuscular Disease Through Patient and Family Perspectives.

Journal: Health expectations : an international journal of public participation in health care and health policy

Published: August 08, 2025

Thinking outside the box: A re-evaluation of Canadian recommended outcome measures in adult spinal muscular atrophy - report of a national consensus workshop.

Thinking outside the box: A re-evaluation of Canadian recommended outcome measures in adult spinal muscular atrophy - report of a national consensus workshop.

Journal: Journal of neuromuscular diseases

Published: May 13, 2025

Gaps and Challenges in the Transition of Care in Neuromuscular Disorders With a Focus on Duchenne Muscular Dystrophy.

Gaps and Challenges in the Transition of Care in Neuromuscular Disorders With a Focus on Duchenne Muscular Dystrophy.

Journal: Pediatric neurology

Published: March 25, 2025

Showing 1-12 of 16

Last Updated: 09/26/2026