Imelda J. De Groot

Nijmegen, GE, Netherlands

Last Updated: 09/26/2026

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Found 94 publications

A Validated Prognostic Score for Time to Loss of Ambulation in Patients With Duchenne Muscular Dystrophy.

A Validated Prognostic Score for Time to Loss of Ambulation in Patients With Duchenne Muscular Dystrophy.

Journal: Neurology

Published: May 26, 2026

Development of the accredited duchenne centers program, a global program to achieve uniform and up-to-date care for all people living with duchenne muscular dystrophy.

Development of the accredited duchenne centers program, a global program to achieve uniform and up-to-date care for all people living with duchenne muscular dystrophy.

Journal: Orphanet journal of rare diseases

Published: March 10, 2025

Predicting trajectories of the north star ambulatory assessment total score in Duchenne muscular dystrophy.

Predicting trajectories of the north star ambulatory assessment total score in Duchenne muscular dystrophy.

Journal: PloS one

Published: February 05, 2025

Awareness of bone strength in patients with neuromuscular disorders: ERN EURO-NMD clinician survey and European patient survey.

Awareness of bone strength in patients with neuromuscular disorders: ERN EURO-NMD clinician survey and European patient survey.

Journal: Journal of the neurological sciences

Published: November 02, 2024

Transition of patients with Duchenne muscular dystrophy from paediatric to adult care: An international Delphi consensus study.

Transition of patients with Duchenne muscular dystrophy from paediatric to adult care: An international Delphi consensus study.

Journal: European journal of paediatric neurology : EJPN : official journal of the European Paediatric Neurology Society

Published: July 05, 2024

Efficacy and Safety of Vamorolone Over 48 Weeks in Boys With Duchenne Muscular Dystrophy: A Randomized Controlled Trial.

Efficacy and Safety of Vamorolone Over 48 Weeks in Boys With Duchenne Muscular Dystrophy: A Randomized Controlled Trial.

Journal: Neurology

Published: February 09, 2024

Longitudinal Course of Long Finger Flexor Shortening in Males with Duchenne Muscular Dystrophy: A Retrospective Review1.

Longitudinal Course of Long Finger Flexor Shortening in Males with Duchenne Muscular Dystrophy: A Retrospective Review1.

Journal: Journal of neuromuscular diseases

Published: November 06, 2023

Responsiveness and meaningful thresholds of PROMIS pain interference, fatigue, and physical function forms in adults with idiopathic inflammatory myopathies: Report from the OMERACT Myositis Working Group.

Responsiveness and meaningful thresholds of PROMIS pain interference, fatigue, and physical function forms in adults with idiopathic inflammatory myopathies: Report from the OMERACT Myositis Working Group.

Journal: Seminars in arthritis and rheumatism

Published: August 27, 2023

Meaningful changes in motor function in Duchenne muscular dystrophy (DMD): A multi-center study.

Meaningful changes in motor function in Duchenne muscular dystrophy (DMD): A multi-center study.

Journal: PloS one

Published: August 11, 2023

Safety and efficacy of tamoxifen in boys with Duchenne muscular dystrophy (TAMDMD): a multicentre, randomised, double-blind, placebo-controlled, phase 3 trial.

Safety and efficacy of tamoxifen in boys with Duchenne muscular dystrophy (TAMDMD): a multicentre, randomised, double-blind, placebo-controlled, phase 3 trial.

Journal: The Lancet. Neurology

Published: March 16, 2023

T Cell Responses to Dystrophin in a Natural History Study of Duchenne Muscular Dystrophy.

T Cell Responses to Dystrophin in a Natural History Study of Duchenne Muscular Dystrophy.

Journal: Human gene therapy

Published: December 01, 2022

Using PRPP-Assessment for measuring change in everyday activities by home-based videos: An exploratory case series study in children with multiple disabilities.

Using PRPP-Assessment for measuring change in everyday activities by home-based videos: An exploratory case series study in children with multiple disabilities.

Journal: Australian occupational therapy journal

Published: November 06, 2022

Showing 1-12 of 94

Last Updated: 09/26/2026