Ines Hernando
Paris, France
Last Updated: 09/26/2026
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Found 3 publications
Supporting the continuous development and use of a patient partnership framework in European rare disease networks (ERNs): a scoping review of frameworks in the scientific literature.
Journal: Journal of community genetics
Published: August 07, 2024
Together4RD position statement on collaboration between European reference networks and industry.
Journal: Orphanet journal of rare diseases
Published: April 11, 2023
Our greatest untapped resource: our patients.
Journal: Journal of community genetics
Published: November 10, 2020
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Last Updated: 09/26/2026