Ingrid B. De Groot

Baarn, UT, Netherlands

Last Updated: 09/26/2026

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Found 30 publications

Building the future of patient-centred research: an EULAR PARE community of practice advancing patient research partner involvement in rheumatology.

Building the future of patient-centred research: an EULAR PARE community of practice advancing patient research partner involvement in rheumatology.

Journal: EULAR rheumatology open

Published: September 01, 2026

Standardized Interoperable Data Collection for Myositis Research: Developing Expert Consensus on Common Data Elements for Myositis Outcome Measures.

Standardized Interoperable Data Collection for Myositis Research: Developing Expert Consensus on Common Data Elements for Myositis Outcome Measures.

Journal: Arthritis care & research

Published: December 08, 2025

Key Principles and Disease-Specific Considerations to Guide Management of Bone Health and Osteoporosis Among Individuals With Neuromuscular Disorders: The Path Forward.

Key Principles and Disease-Specific Considerations to Guide Management of Bone Health and Osteoporosis Among Individuals With Neuromuscular Disorders: The Path Forward.

Journal: Muscle & nerve

Published: August 18, 2025

Mortality and Surgery-Related Complications in Very Low and Extreme Low Birth Weight Infants Treated for Esophageal Atresia: A Multi-Center Cohort Study.

Mortality and Surgery-Related Complications in Very Low and Extreme Low Birth Weight Infants Treated for Esophageal Atresia: A Multi-Center Cohort Study.

Journal: Journal of pediatric surgery

Published: May 14, 2025

The DESTINIES Study: an online Delphi study to build international consensus on the medical conditions and procedures that confer immunosuppression and their respective COVID-19 risk profiles.

The DESTINIES Study: an online Delphi study to build international consensus on the medical conditions and procedures that confer immunosuppression and their respective COVID-19 risk profiles.

Journal: EClinicalMedicine

Published: February 13, 2025

Construct validity of PROMIS pain interference, fatigue, and physical function as patient-reported outcomes in adults with idiopathic inflammatory myopathies: An international study from the OMERACT myositis working group.

Construct validity of PROMIS pain interference, fatigue, and physical function as patient-reported outcomes in adults with idiopathic inflammatory myopathies: An international study from the OMERACT myositis working group.

Journal: Seminars in arthritis and rheumatism

Published: April 04, 2024

Patient-Reported Outcome Measures in Neuromuscular Diseases: A Scoping Review.

Patient-Reported Outcome Measures in Neuromuscular Diseases: A Scoping Review.

Journal: Journal of neuromuscular diseases

Published: March 22, 2024

The impact of pain on daily activities in patients with idiopathic inflammatory myopathies: Report from the OMERACT myositis working group.

The impact of pain on daily activities in patients with idiopathic inflammatory myopathies: Report from the OMERACT myositis working group.

Journal: Seminars in arthritis and rheumatism

Published: February 09, 2024

Collaborative research in myositis-related disorders: MIHRA, a global shared community model.

Collaborative research in myositis-related disorders: MIHRA, a global shared community model.

Journal: Clinical and experimental rheumatology

Published: February 02, 2024

Mental health in paediatric and adult myositis-related diseases: current state of research, interventions, and future steps from the MIHRA Psychological Impact Scientific Working Group.

Mental health in paediatric and adult myositis-related diseases: current state of research, interventions, and future steps from the MIHRA Psychological Impact Scientific Working Group.

Journal: Clinical and experimental rheumatology

Published: October 30, 2023

Patient outcomes in longitudinal observational studies (POLOS) of rheumatoid arthritis: Determining the OMERACT core domain set.

Patient outcomes in longitudinal observational studies (POLOS) of rheumatoid arthritis: Determining the OMERACT core domain set.

Journal: Seminars in arthritis and rheumatism

Published: September 07, 2023

Working towards a patient-centred Global Myositis Alliance: call for partnership.

Working towards a patient-centred Global Myositis Alliance: call for partnership.

Journal: Clinical and experimental rheumatology

Published: October 29, 2022

Showing 1-12 of 30

Last Updated: 09/26/2026