Isolde R. Kuijlaars

Utrecht, UT, Netherlands

Last Updated: 09/26/2026

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Found 14 publications

Responsiveness and Minimal Important Change of the Haemophilia Activities List in Patients With Inherited Bleeding Disorders.

Responsiveness and Minimal Important Change of the Haemophilia Activities List in Patients With Inherited Bleeding Disorders.

Journal: Haemophilia : the official journal of the World Federation of Hemophilia
Published: November 11, 2025

Psychometrics of the patient-reported outcomes measurement information system measures in hemophilia: the applicability of the pediatric item banks.

Psychometrics of the patient-reported outcomes measurement information system measures in hemophilia: the applicability of the pediatric item banks.

Journal: Research and practice in thrombosis and haemostasis
Published: May 02, 2023

Harmonizing patient-reported outcome measurements in inherited bleeding disorders with PROMIS.

Harmonizing patient-reported outcome measurements in inherited bleeding disorders with PROMIS.

Journal: Haemophilia : the official journal of the World Federation of Hemophilia
Published: July 11, 2022

Proof of concept and feasibility of a blended physiotherapy intervention for persons with haemophilic arthropathy.

Proof of concept and feasibility of a blended physiotherapy intervention for persons with haemophilic arthropathy.

Journal: Haemophilia : the official journal of the World Federation of Hemophilia
Published: June 28, 2022

Validation of the pedHALshort and HALshort in Dutch children and adults with haemophilia.

Validation of the pedHALshort and HALshort in Dutch children and adults with haemophilia.

Journal: Haemophilia : the official journal of the World Federation of Hemophilia
Published: January 06, 2022

Checklist Individual Strength to measure severe fatigue in immune thrombocytopenia.

Checklist Individual Strength to measure severe fatigue in immune thrombocytopenia.

Journal: British journal of haematology
Published: September 02, 2021

Generic PROMIS item banks in adults with hemophilia for patient-reported outcome assessment: Feasibility, measurement properties, and relevance.

Generic PROMIS item banks in adults with hemophilia for patient-reported outcome assessment: Feasibility, measurement properties, and relevance.

Journal: Research and practice in thrombosis and haemostasis
Published: July 28, 2021

Shortening the Haemophilia Activities List (HAL) from 42 items to 18 items.

Shortening the Haemophilia Activities List (HAL) from 42 items to 18 items.

Journal: Haemophilia : the official journal of the World Federation of Hemophilia
Published: May 18, 2021

Assessing the test-retest reliability and smallest detectable change of the Haemophilia Activities List.

Assessing the test-retest reliability and smallest detectable change of the Haemophilia Activities List.

Journal: Haemophilia : the official journal of the World Federation of Hemophilia
Published: September 16, 2020

Shortening the paediatric Haemophilia Activities List (pedHAL) based on pooled data from international studies.

Shortening the paediatric Haemophilia Activities List (pedHAL) based on pooled data from international studies.

Journal: Haemophilia : the official journal of the World Federation of Hemophilia
Published: September 10, 2020

Evaluating international Haemophilia Joint Health Score (HJHS) results combined with expert opinion: Options for a shorter HJHS.

Evaluating international Haemophilia Joint Health Score (HJHS) results combined with expert opinion: Options for a shorter HJHS.

Journal: Haemophilia : the official journal of the World Federation of Hemophilia
Published: July 23, 2020

A Blended Physiotherapy Intervention for Persons With Hemophilic Arthropathy: Development Study.

A Blended Physiotherapy Intervention for Persons With Hemophilic Arthropathy: Development Study.

Journal: Journal of medical Internet research
Published: October 09, 2019
Showing 1-12 of 14

Last Updated: 09/26/2026