Jacinta M. Saldaris
Perth, WA, Australia
Last Updated: 09/26/2026
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Found 27 publications
Associations between EEG measures and clinical severity in CDKL5 deficiency disorder.
Journal: Clinical neurophysiology : official journal of the International Federation of Clinical Neurophysiology
Published: December 04, 2025
Content Validation of the Communication Inventory Disability-Observer Reported (CID-OR).
Journal: Journal of child neurology
Published: September 03, 2025
Beyond Seizures as an Outcome Measure: A Global Severity Scoring System for CDKL5 Deficiency Disorder.
Journal: Brain and behavior
Published: July 21, 2025
Development and initial validation of the Communication Inventory Disability - Observer Reported (CID-OR): a measure of communication in CDKL5 deficiency disorder.
Journal: Journal of patient-reported outcomes
Published: May 08, 2025
Parent/caregiver perspectives of meaningful improvement in functional domains for people with CDKL5 deficiency disorder: a mixed-methods study.
Journal: Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation
Published: April 30, 2025
Online Health Literacy Resources for People With Intellectual Disability: A Grey Literature Scoping Review.
Journal: Journal of intellectual disability research : JIDR
Published: February 04, 2025
Modification of a parent-report sleep scale for individuals with CDKL5 deficiency disorder: a psychometric study.
Journal: Journal of clinical sleep medicine : JCSM : official publication of the American Academy of Sleep Medicine
Published: July 04, 2024
Exploring sleep challenges in CDKL5 Deficiency Disorder.
Journal: Journal of neurodevelopmental disorders
Published: April 04, 2024
Parent-reported outcome measures evaluating communication in individuals with rare neurodevelopmental disorders: A systematic review.
Journal: International journal of language & communication disorders
Published: March 07, 2024
Psychometric evaluation of clinician- and caregiver-reported clinical severity assessments for individuals with CDKL5 deficiency disorder.
Journal: Epilepsia
Published: February 08, 2024
Communication of individuals with CDKL5 deficiency disorder as observed by caregivers: A descriptive qualitative study.
Journal: American journal of medical genetics. Part A
Published: October 24, 2023
Last Updated: 09/26/2026