Jana Willems

Freiburg, BW, Germany

Last Updated: 09/26/2026

Save publications for later

Sign Up

Not sure about your diagnosis?

Check Your Symptoms

Found 11 publications

Transition to adulthood in Duchenne Muscular Dystrophy: a systematic review with narrative synthesis on health systems, policies, and the role of health care providers.

Transition to adulthood in Duchenne Muscular Dystrophy: a systematic review with narrative synthesis on health systems, policies, and the role of health care providers.

Journal: Frontiers in public health

Published: December 19, 2025

Bridging clinical care and lived experience: early implementation of longitudinal health-related quality of life monitoring in congenital heart disease.

Bridging clinical care and lived experience: early implementation of longitudinal health-related quality of life monitoring in congenital heart disease.

Journal: Frontiers in pediatrics

Published: September 08, 2025

Evidence-Based Recommendations for Geriatric Trauma Care: Systematic Review and AI-Assisted Consolidation of Clinical Practice Guidelines Between 2016 and 2021.

Evidence-Based Recommendations for Geriatric Trauma Care: Systematic Review and AI-Assisted Consolidation of Clinical Practice Guidelines Between 2016 and 2021.

Journal: Annals of surgery open : perspectives of surgical history, education, and clinical approaches

Published: April 05, 2025

Gaps and Challenges in the Transition of Care in Neuromuscular Disorders With a Focus on Duchenne Muscular Dystrophy.

Gaps and Challenges in the Transition of Care in Neuromuscular Disorders With a Focus on Duchenne Muscular Dystrophy.

Journal: Pediatric neurology

Published: March 25, 2025

Cross-sectional survey among professionals on communication and mental health care for asylum seeking and refugee minors in Germany.

Cross-sectional survey among professionals on communication and mental health care for asylum seeking and refugee minors in Germany.

Journal: Communications medicine

Published: January 26, 2025

"What makes a good guideline? - A systematic review and analysis of 120 clinical practice guidelines in orthogeriatric care and related fields using the AGREE II tool".

"What makes a good guideline? - A systematic review and analysis of 120 clinical practice guidelines in orthogeriatric care and related fields using the AGREE II tool".

Journal: Journal of clinical epidemiology

Published: January 20, 2025

Challenges and opportunities of evaluating work based interprofessional learning: insights from a pediatric interprofessional training ward.

Challenges and opportunities of evaluating work based interprofessional learning: insights from a pediatric interprofessional training ward.

Journal: Frontiers in medicine

Published: June 22, 2023

Evaluating case management for caregivers of children with spinal muscular atrophy type I and II-an exploratory, controlled, mixed-methods trial.

Evaluating case management for caregivers of children with spinal muscular atrophy type I and II-an exploratory, controlled, mixed-methods trial.

Journal: Frontiers in pediatrics

Published: April 25, 2023

Barriers and facilitating factors of care coordination for children with spinal muscular atrophy type I and II from the caregivers' perspective: an interview study.

Barriers and facilitating factors of care coordination for children with spinal muscular atrophy type I and II from the caregivers' perspective: an interview study.

Journal: Orphanet journal of rare diseases

Published: September 29, 2022

The German pediatric integrated care survey (PICS-D): Translation, adaptation, and psychometric testing.

The German pediatric integrated care survey (PICS-D): Translation, adaptation, and psychometric testing.

Journal: Frontiers in pediatrics

Published: September 29, 2022

Evaluation of a Case Management to Support Families With Children Diagnosed With Spinal Muscular Atrophy-Protocol of a Controlled Mixed-Methods Study.

Evaluation of a Case Management to Support Families With Children Diagnosed With Spinal Muscular Atrophy-Protocol of a Controlled Mixed-Methods Study.

Journal: Frontiers in pediatrics

Published: October 06, 2020

Showing 1-11 of 11

Last Updated: 09/26/2026