Jes Rahbek

Arhus, Denmark

Last Updated: 09/26/2026

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Found 13 publications

Parents' advice to other parents of children with spinal muscular atrophy: Two nationwide follow-ups.

Parents' advice to other parents of children with spinal muscular atrophy: Two nationwide follow-ups.

Journal: Journal of child health care : for professionals working with children in the hospital and community
Published: May 17, 2021

Parents' Experiences of Information and Decision Making in the Care of Their Child With Severe Spinal Muscular Atrophy: A Population Survey.

Parents' Experiences of Information and Decision Making in the Care of Their Child With Severe Spinal Muscular Atrophy: A Population Survey.

Journal: Journal of child neurology
Published: January 16, 2019

Bereaved Parents More Satisfied With the Care Given to Their Child With Severe Spinal Muscular Atrophy Than Nonbereaved.

Bereaved Parents More Satisfied With the Care Given to Their Child With Severe Spinal Muscular Atrophy Than Nonbereaved.

Journal: Journal of child neurology
Published: December 07, 2018

European Cross-Sectional Survey of Current Care Practices for Duchenne Muscular Dystrophy Reveals Regional and Age-Dependent Differences.

European Cross-Sectional Survey of Current Care Practices for Duchenne Muscular Dystrophy Reveals Regional and Age-Dependent Differences.

Journal: Journal of neuromuscular diseases
Published: December 03, 2016

Labour market participation and sick leave among patients diagnosed with myasthenia gravis in Denmark 1997-2011: a Danish nationwide cohort study.

Labour market participation and sick leave among patients diagnosed with myasthenia gravis in Denmark 1997-2011: a Danish nationwide cohort study.

Journal: BMC neurology
Published: August 01, 2016

Predictors of Health-Related Quality of Life in boys with Duchenne muscular dystrophy from six European countries.

Predictors of Health-Related Quality of Life in boys with Duchenne muscular dystrophy from six European countries.

Journal: Journal of neurology
Published: July 20, 2016

206th ENMC International Workshop: Care for a novel group of patients - adults with Duchenne muscular dystrophy Naarden, The Netherlands, 23-25 May 2014.

206th ENMC International Workshop: Care for a novel group of patients - adults with Duchenne muscular dystrophy Naarden, The Netherlands, 23-25 May 2014.

Journal: Neuromuscular disorders : NMD
Published: May 06, 2015

How Narrative Journalistic Stories Can Communicate the Individual's Challenges of Daily Living with Amyotrophic Lateral Sclerosis.

How Narrative Journalistic Stories Can Communicate the Individual's Challenges of Daily Living with Amyotrophic Lateral Sclerosis.

Journal: The patient
Published: September 19, 2014

184th ENMC International Workshop: pain and fatigue in neuromuscular disorders: 20-22 May 2011, Naarden, The Netherlands.

184th ENMC International Workshop: pain and fatigue in neuromuscular disorders: 20-22 May 2011, Naarden, The Netherlands.

Journal: Neuromuscular disorders : NMD
Published: May 23, 2013

The TREAT-NMD Duchenne muscular dystrophy registries: conception, design, and utilization by industry and academia.

The TREAT-NMD Duchenne muscular dystrophy registries: conception, design, and utilization by industry and academia.

Journal: Human mutation
Published: May 08, 2013

The European NeuroMuscular Centre (ENMC): 20 years on ….

The European NeuroMuscular Centre (ENMC): 20 years on ….

Journal: Neuromuscular disorders : NMD
Published: February 20, 2013

Guidance in social and ethical issues related to clinical, diagnostic care and novel therapies for hereditary neuromuscular rare diseases: "translating" the translational.

Guidance in social and ethical issues related to clinical, diagnostic care and novel therapies for hereditary neuromuscular rare diseases: "translating" the translational.

Journal: PLoS currents
Published: January 19, 2013
Showing 1-12 of 13

Last Updated: 09/26/2026