Johanna W. Hoefnagels

Utrecht, UT, Netherlands

Last Updated: 09/26/2026

Save publications for later
Sign Up
Not sure about your diagnosis?
Check Your Symptoms
Found 16 publications

The SMART-Youth study: protocol for a longitudinal prospective cohort study to identify disease-associated and lifestyle-associated cardiovascular risk factors for preclinical atherosclerosis in children with a chronic condition.

The SMART-Youth study: protocol for a longitudinal prospective cohort study to identify disease-associated and lifestyle-associated cardiovascular risk factors for preclinical atherosclerosis in children with a chronic condition.

Journal: BMJ open
Published: August 13, 2026

Design and rationale for Exploring Predictors of successful healthCare Transition for adolescents with chronic conditions in a longitudinal explorative cohort.

Design and rationale for Exploring Predictors of successful healthCare Transition for adolescents with chronic conditions in a longitudinal explorative cohort.

Journal: Health care transitions
Published: November 28, 2025

Fatigue in pediatric inflammatory bowel disease: Explained by transdiagnostic and disease-focused factors.

Fatigue in pediatric inflammatory bowel disease: Explained by transdiagnostic and disease-focused factors.

Journal: Journal of pediatric gastroenterology and nutrition
Published: July 22, 2025

Translation and validation of the Swahili pediatric quality of life family impact module for caregivers of children with congenital heart disease.

Translation and validation of the Swahili pediatric quality of life family impact module for caregivers of children with congenital heart disease.

Journal: Scientific reports
Published: September 26, 2024

Impact of play restriction during the COVID-19 pandemic on mental well-being in children with a chronic condition.

Impact of play restriction during the COVID-19 pandemic on mental well-being in children with a chronic condition.

Journal: European journal of pediatrics
Published: May 21, 2024

The quality of life of children with heart disease in Tanzania: a single center study.

The quality of life of children with heart disease in Tanzania: a single center study.

Journal: BMC pediatrics
Published: May 20, 2024

Self-reported quantity and quality of sleep in children and adolescents with a chronic condition compared to healthy controls.

Self-reported quantity and quality of sleep in children and adolescents with a chronic condition compared to healthy controls.

Journal: European journal of pediatrics
Published: December 28, 2022

Paediatric short fatigue questionnaire, a 4-item fatigue questionnaire for children.

Paediatric short fatigue questionnaire, a 4-item fatigue questionnaire for children.

Journal: Journal of psychosomatic research
Published: September 19, 2022

The Impact of the COVID-19 Outbreak on Mental Wellbeing in Children with a Chronic Condition Compared to Healthy Peers.

The Impact of the COVID-19 Outbreak on Mental Wellbeing in Children with a Chronic Condition Compared to Healthy Peers.

Journal: International journal of environmental research and public health
Published: January 21, 2022

The PROactive cohort study: rationale, design, and study procedures.

The PROactive cohort study: rationale, design, and study procedures.

Journal: European journal of epidemiology
Published: October 26, 2021

Adherence to prophylaxis and its association with activation of self-management and treatment satisfaction.

Adherence to prophylaxis and its association with activation of self-management and treatment satisfaction.

Journal: Haemophilia : the official journal of the World Federation of Hemophilia
Published: February 15, 2021

Sports participation is not associated with adherence to prophylaxis in Dutch patients with haemophilia.

Sports participation is not associated with adherence to prophylaxis in Dutch patients with haemophilia.

Journal: Haemophilia : the official journal of the World Federation of Hemophilia
Published: November 16, 2020
Showing 1-12 of 16

Last Updated: 09/26/2026