Julia H. Quitmann
Hamburg, HH, Germany
Last Updated: 09/26/2026
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Found 89 publications
Clinical practice recommendations for the diagnosis and management of nephropathic cystinosis.
Journal: Nature reviews. Nephrology
Published: May 14, 2026
Development and pilot testing of the quality of life of parents of children with achondroplasia questionnaire.
Journal: Journal of patient-reported outcomes
Published: April 08, 2026
Perceived microaggressions and migrant health in Germany: the role of psychological capital.
Journal: BMC psychology
Published: May 22, 2025
Perceived microaggressions and migrant health in Germany: the role of psychological capital.
Journal: BMC psychology
Published: May 22, 2025
Health-related quality of life of children and adolescents with the most common ectodermal dysplasia: focus group study and item development for a condition-specific patient-reported outcome measure.
Journal: Orphanet journal of rare diseases
Published: April 13, 2025
Development of the QoLISSY 0-4 questionnaire: a health-related quality of life tool for young children with short stature.
Journal: Journal of patient-reported outcomes
Published: January 24, 2025
Coping and quality of life of parents of children with achondroplasia-a narrative review.
Journal: Frontiers in medicine
Published: September 23, 2024
Evaluation of the Health-Related Quality of Life and Mental Health of Parents With Children and Adolescents With a Rare Disease Based on the Results of a Randomized Controlled Trial to Investigate a Family-Based Intervention and an Online Intervention for Affected Families (CARE-FAM-NET).
Journal: Family process
Published: July 24, 2024
Cultural adaptation for Brazil of the Child Abuse and Neglect Reporting Self-Efficacy Questionnaire.
Cultural adaptation for Brazil of the Child Abuse and Neglect Reporting Self-Efficacy Questionnaire.
Journal: Revista brasileira de enfermagem
Published: May 29, 2024
DySMA - an Instrument to Monitor Swallowing Function in Children with Spinal Muscular Atrophy ages 0 to 24 Months: Development, Consensus, and Pilot Testing.
Journal: Journal of neuromuscular diseases
Published: March 08, 2024
Last Updated: 09/26/2026