Last Updated: 09/26/2026
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Found 24 publications
No Single Specialty Owns Symptom Care: The Case for Integrated Management in Children With Neurological Conditions and Complex Health Care Needs.
Journal: Pediatric neurology
Published: July 13, 2026
Palliative Care in Children With Severe Neurological Impairment: The PediQUEST Refine Case Series.
Journal: Journal of pain and symptom management
Published: January 08, 2026
Insights From the International Consensus on Neuro-Irritability in Pediatric Palliative Care: Expanding the Known, Challenging the Unknown.
Journal: Neurology. Clinical practice
Published: February 06, 2025
Towards new perspectives: International consensus guidance on dystonia in pediatric palliative care.
Towards new perspectives: International consensus guidance on dystonia in pediatric palliative care.
Journal: European journal of paediatric neurology : EJPN : official journal of the European Paediatric Neurology Society
Published: November 01, 2024
Appreciating the Abilities of Children With Severe Neurologic Impairment.
Journal: Hospital pediatrics
Published: November 10, 2023
The Impact of Caring for Children With Severe Neurological Impairment on Clinicians.
Journal: Clinical pediatrics
Published: May 25, 2022
Asset-Based Health Care for Children With Severe Neurologic Impairment.
Journal: Pediatrics
Published: May 09, 2022
Forming Clinician-Parent Therapeutic Alliance for Children With Severe Neurologic Impairment.
Journal: Hospital pediatrics
Published: February 10, 2022
From Monochromatic to Technicolor: Parent Perspectives on Challenges and Approaches to Seeing Children with Severe Neurological Impairment Holistically.
Journal: Journal of palliative medicine
Published: September 22, 2021
Parents Are the Experts: A Qualitative Study of the Experiences of Parents of Children With Severe Neurological Impairment During Decision-Making.
Journal: Journal of pain and symptom management
Published: April 17, 2021
Initial Validation of GRASP: A Differential Diagnoses Algorithm for Children With Medical Complexity and an Unknown Source of Pain.
Journal: Hospital pediatrics
Published: July 15, 2020
Severe Neurological Impairment: A delphi consensus-based definition.
Journal: European journal of paediatric neurology : EJPN : official journal of the European Paediatric Neurology Society
Published: May 28, 2020
Last Updated: 09/26/2026