Last Updated: 09/26/2026
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Found 40 publications
Eliciting accurate and actionable parent preferences regarding their children's health using discrete choice experiments.
Journal: Archives of disease in childhood
Published: May 18, 2026
Parent- and Intensivist-Reported Utility for Neonatal Genomic Testing.
Journal: JAMA network open
Published: April 08, 2026
Partnering Through Uncertainty: A Rare Risk Reveals a Common Need.
Journal: Pediatrics
Published: March 06, 2026
Parent-to-parent recommendations for coping with congenital heart disease: a mixed-methods study.
Journal: Archives of disease in childhood
Published: December 05, 2025
Addressing neonatal intensive care unit clinicians' distress via interprofessional meetings.
Journal: Journal of perinatology : official journal of the California Perinatal Association
Published: December 04, 2025
Response to Sansom et al.
Journal: Genetics in medicine : official journal of the American College of Medical Genetics
Published: November 01, 2025
Managing the Uncertainty of "Precision" While Navigating Goals of Care: A Framework for Collaborative Interpretation of Complex Genomic Testing Results in Critically-Ill Neonates.
Journal: Children (Basel, Switzerland)
Published: October 31, 2025
How variants of uncertain significance affect clinical decisions: A systematic review.
Journal: Genetics in medicine : official journal of the American College of Medical Genetics
Published: September 19, 2025
Rapid targeted analysis of the genome: Rapid genomic sequencing in critically ill infants.
Journal: Genetics in medicine open
Published: June 09, 2025
Health-related quality of life among families of children with severe bronchopulmonary dysplasia.
Journal: Journal of perinatology : official journal of the California Perinatal Association
Published: May 04, 2025
Parental Perspectives on Development in Children Born Extremely Preterm.
Journal: The Journal of pediatrics
Published: February 11, 2025
Last Updated: 09/26/2026