Last Updated: 09/26/2026
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Found 15 publications
Parental Values During Tracheostomy Decision-Making for Their Critically Ill Child: Interviews of Parents Who Just Made the Decision.
Journal: Children (Basel, Switzerland)
Published: June 10, 2025
Development and acceptability testing of a tracheostomy decision support video for parents.
Journal: PEC innovation
Published: June 21, 2024
From "surviving to thriving": Mood Lifters - a wellness program for parents of medically complex children.
Journal: Palliative & supportive care
Published: June 15, 2023
Preparing a Pediatric Palliative Care Program for Sustainable Support: A Practice Reflection.
Journal: The Journal of neuroscience nursing : journal of the American Association of Neuroscience Nurses
Published: September 02, 2022
A Narrative Review of Pediatric Respite Care Initiatives in the United States.
Journal: Journal of hospice and palliative nursing : JHPN : the official journal of the Hospice and Palliative Nurses Association
Published: April 26, 2022
A "Good Death" for Children with Cardiac Disease.
Journal: Pediatric cardiology
Published: September 25, 2021
Palliative care is not associated with decreased intensity of care: Results of a chart review from a large children's hospital.
Journal: Pediatric blood & cancer
Published: February 21, 2021
Adapting user-centered design principles to improve communication of peer parent narratives on pediatric tracheostomy.
Journal: BMC medical informatics and decision making
Published: February 11, 2021
Using Narratives to Correct Forecasting Errors in Pediatric Tracheostomy Decision Making.
Journal: Medical decision making : an international journal of the Society for Medical Decision Making
Published: February 09, 2021
Supporting Pediatric Patients and Their Families at the End of Life: Perspectives From Bereaved Parents.
Journal: The American journal of hospice & palliative care
Published: May 07, 2020
Experiences at the End of Life From the Perspective of Bereaved Parents: Results of a Qualitative Focus Group Study.
Journal: The American journal of hospice & palliative care
Published: December 31, 2019
Aiding end-of-life medical decision-making: A Cardinal Issue Perspective.
Journal: Palliative & supportive care
Published: November 29, 2019
Last Updated: 09/26/2026