Last Updated: 09/26/2026
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Found 20 publications
Lived Experiences of Teens and Adults in North America Who Grew Up With a Sibling Diagnosed With Prader Willi Syndrome.
Journal: Journal of applied research in intellectual disabilities : JARID
Published: February 04, 2026
Monitoring immunological COVID-19 vaccine clinical testing across the CEPI Centralized Laboratory Network.
Journal: Frontiers in immunology
Published: January 31, 2025
Life Satisfaction, Global Health and Mood in Prader-Willi Syndrome: Use of PROMIS and Glasgow Depression Scales.
Journal: Journal of applied research in intellectual disabilities : JARID
Published: November 14, 2024
Patient advocacy group perspectives on treatment priorities and clinical trials for the rare neurodevelopmental condition, Prader-Willi syndrome.
Journal: Orphanet journal of rare diseases
Published: November 13, 2024
Analysis of Hyperphagia Questionnaire for Clinical Trials (HQ-CT) scores in typically developing individuals and those with Prader-Willi syndrome.
Journal: Scientific reports
Published: September 30, 2023
Standardised quantitative assays for anti-SARS-CoV-2 immune response used in vaccine clinical trials by the CEPI Centralized Laboratory Network: a qualification analysis.
Journal: The Lancet. Microbe
Published: July 28, 2023
Histo-Blood Group Antigen Null Phenotypes Associated With a Decreased Risk of Clinical Rotavirus Vaccine Failure Among Children <2 Years of Age Participating in the Vaccine Impact on Diarrhea in Africa (VIDA) Study in Kenya, Mali, and the Gambia.
Journal: Clinical infectious diseases : an official publication of the Infectious Diseases Society of America
Published: April 19, 2023
The Prader-Willi Syndrome Anxiousness and Distress Behaviors Questionnaire: Development and Psychometric Validation.
Journal: Value in health : the journal of the International Society for Pharmacoeconomics and Outcomes Research
Published: February 10, 2022
Clinical endpoints to inform vaccine policy: A systematic review of outcome measures from pediatric influenza vaccine efficacy trials.
Journal: Vaccine
Published: December 15, 2021
Suicidality in individuals with Prader-Willi syndrome: a review of registry survey data.
Journal: BMC psychiatry
Published: July 01, 2021
Behavioral features in Prader-Willi syndrome (PWS): consensus paper from the International PWS Clinical Trial Consortium.
Journal: Journal of neurodevelopmental disorders
Published: December 23, 2020
Last Updated: 09/26/2026