Last Updated: 09/26/2026
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Found 70 publications
Design and evaluation of PROMIS® fatigue and cognitive function short forms customized for adults with primary sclerosing cholangitis.
Journal: Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation
Published: May 11, 2026
Palliative Care Intervention for Patients With End-Stage Liver Disease: A Cluster Randomized Clinical Trial.
Journal: JAMA internal medicine
Published: April 13, 2026
Measuring Perceived Goal Concordant Care Among Patients with Advanced Chronic Liver Diseases and their Caregivers.
Journal: Clinical and translational gastroenterology
Published: April 12, 2026
Congruence Between Child Self-Reported and Caregiver-Proxy-Reported Health-Related Quality of Life in Children With Juvenile Idiopathic Arthritis and Systemic Lupus Erythematosus.
Journal: The Journal of rheumatology
Published: October 08, 2025
Evaluating different scoring algorithms to assess communication ability for individuals living with Angelman syndrome: the Observer-Reported Communication Ability (ORCA) measure.
Journal: Journal of patient-reported outcomes
Published: September 26, 2025
Association of the Observer-Reported Communication Ability (ORCA) Measure with Established Communication Measures: Insights From the Angelman Syndrome Natural History Study.
Journal: Journal of autism and developmental disorders
Published: August 14, 2025
The spectrum of communication abilities in children with 12 rare neurodevelopmental disorders: a qualitative study with caregivers.
Journal: Journal of child psychology and psychiatry, and allied disciplines
Published: August 13, 2025
Caregiver Meaningful Score Differences and Meaningful Score Regions for the Observer-Reported Communication Ability Measure for Individuals with Angelman Syndrome.
Journal: Value in health : the journal of the International Society for Pharmacoeconomics and Outcomes Research
Published: April 29, 2025
Meaningful Score Differences and Meaningful Score Regions of the Patient-Reported Outcomes Measurement Information System® Pediatric Asthma Impact Scale.
Journal: Value in health : the journal of the International Society for Pharmacoeconomics and Outcomes Research
Published: January 27, 2025
Health-related quality of life profiles of adults with arthritis and/or fibromyalgia: a cross-sectional study.
Journal: Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation
Published: October 30, 2024
Pain Interference in Juvenile Idiopathic Arthritis.
Journal: The Journal of rheumatology
Published: July 24, 2024
Last Updated: 09/26/2026