Libby Wood
Newcastle Upon Tyne, ENG, United Kingdom
Last Updated: 09/26/2026
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Found 11 publications
Correction to: Eight years after an international workshop on myotonic dystrophy patient registries: case study of a global collaboration for a rare disease.
Journal: Orphanet journal of rare diseases
Published: July 18, 2019
Eight years after an international workshop on myotonic dystrophy patient registries: case study of a global collaboration for a rare disease.
Journal: Orphanet journal of rare diseases
Published: February 27, 2018
222nd ENMC International Workshop:: Myotonic dystrophy, developing a European consortium for care and therapy, Naarden, The Netherlands, 1-2 July 2016.
Journal: Neuromuscular disorders : NMD
Published: November 14, 2017
Chronic pain has a strong impact on quality of life in facioscapulohumeral muscular dystrophy.
Journal: Muscle & nerve
Published: October 14, 2017
RD-Connect, NeurOmics and EURenOmics: collaborative European initiative for rare diseases.
Journal: European journal of human genetics : EJHG
Published: October 13, 2017
Benign and malignant tumors in the UK myotonic dystrophy patient registry.
Journal: Muscle & nerve
Published: June 24, 2017
Respiratory involvement in ambulant and non-ambulant patients with facioscapulohumeral muscular dystrophy.
Journal: Journal of neurology
Published: April 19, 2017
Linked Registries: Connecting Rare Diseases Patient Registries through a Semantic Web Layer.
Journal: BioMed research international
Published: February 03, 2017
The UK Myotonic Dystrophy Patient Registry: facilitating and accelerating clinical research.
Journal: Journal of neurology
Published: January 05, 2017
Design, set-up and utility of the UK facioscapulohumeral muscular dystrophy patient registry.
Journal: Journal of neurology
Published: November 26, 2015
Showing 1-11 of 11
Last Updated: 09/26/2026