Linda Webb-Abetz

Macclesfield, ENG, United Kingdom

Last Updated: 09/26/2026

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Found 33 publications

Incorporating Patient Perspectives into a Composite Score for Measuring Disease Progression in Spinocerebellar Ataxia (SCA).

Incorporating Patient Perspectives into a Composite Score for Measuring Disease Progression in Spinocerebellar Ataxia (SCA).

Journal: Neurology and therapy

Published: November 03, 2025

Assessing Patient-Reported Outcomes in Acute Attacks of Hereditary Angioedema: Insights from a Mixed Methods Study of Participants Receiving Standard-of-Care Treatments in a Real-World Setting.

Assessing Patient-Reported Outcomes in Acute Attacks of Hereditary Angioedema: Insights from a Mixed Methods Study of Participants Receiving Standard-of-Care Treatments in a Real-World Setting.

Journal: Clinical reviews in allergy & immunology

Published: August 22, 2025

Understanding lived experiences with KCNQ2 developmental and epileptic encephalopathy.

Understanding lived experiences with KCNQ2 developmental and epileptic encephalopathy.

Journal: Epilepsy & behavior : E&B

Published: July 16, 2025

Content Validity of the Spinocerebellar Ataxia Composite Score as a Measure of Disease Progression in Patients with Spinocerebellar Ataxia.

Content Validity of the Spinocerebellar Ataxia Composite Score as a Measure of Disease Progression in Patients with Spinocerebellar Ataxia.

Journal: Cerebellum (London, England)

Published: May 02, 2025

Psychometric properties of the Infantile Neuroaxonal Dystrophy Rating Scale.

Psychometric properties of the Infantile Neuroaxonal Dystrophy Rating Scale.

Journal: Developmental medicine and child neurology

Published: November 16, 2024

Content Validity of the Friedreich Ataxia Rating Scale in Patients with Spinocerebellar Ataxia.

Content Validity of the Friedreich Ataxia Rating Scale in Patients with Spinocerebellar Ataxia.

Journal: Neurology and therapy

Published: November 13, 2024

Development, content validation and feasibility of a decision aid tool for the treatment of women with menopausal symptoms.

Development, content validation and feasibility of a decision aid tool for the treatment of women with menopausal symptoms.

Journal: Maturitas

Published: September 06, 2024

Content Validity of the Modified Functional Scale for the Assessment and Rating of Ataxia (f-SARA) Instrument in Spinocerebellar Ataxia.

Content Validity of the Modified Functional Scale for the Assessment and Rating of Ataxia (f-SARA) Instrument in Spinocerebellar Ataxia.

Journal: Cerebellum (London, England)

Published: April 29, 2024

International Expert Consensus on Relevant Health and Functioning Concepts to Assess in Users of Tobacco and Nicotine Products: Delphi Study.

International Expert Consensus on Relevant Health and Functioning Concepts to Assess in Users of Tobacco and Nicotine Products: Delphi Study.

Journal: JMIR formative research

Published: March 20, 2024

Development and initial validation of a new self-report measure to assess perceived dependence on tobacco and nicotine products.

Development and initial validation of a new self-report measure to assess perceived dependence on tobacco and nicotine products.

Journal: Scientific reports

Published: January 26, 2024

Development and testing of an alternative responder definition for EULAR Sjögren's Syndrome Patient Reported Index (ESSPRI).

Development and testing of an alternative responder definition for EULAR Sjögren's Syndrome Patient Reported Index (ESSPRI).

Journal: RMD open

Published: September 08, 2022

Content validation of a caregiver diary to monitor severity and recovery of pediatric patients with respiratory syncytial virus infection.

Content validation of a caregiver diary to monitor severity and recovery of pediatric patients with respiratory syncytial virus infection.

Journal: Journal of patient-reported outcomes

Published: September 24, 2021

Showing 1-12 of 33

Last Updated: 09/26/2026