Last Updated: 09/26/2026
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Found 9 publications
A model for oversight of rare disease studies: The 25-year experience of the cystic fibrosis foundation data safety monitoring board.
Journal: Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society
Published: January 19, 2024
Omitting placebos from early-stage clinical trials of cystic fibrosis therapies.
Journal: Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society
Published: October 20, 2023
Cystic fibrosis research: The only constant is change.
Journal: Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society
Published: July 17, 2023
Advancing the pipeline of cystic fibrosis clinical trials: a new roadmap with a global trial network perspective.
Journal: The Lancet. Respiratory medicine
Published: May 17, 2023
Severe respiratory viral infections in children with history of asymptomatic or mild COVID-19.
Journal: Pediatric pulmonology
Published: August 05, 2021
Perceptions of safety monitoring in CF clinical studies and potential impact on future study participation.
Journal: Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society
Published: December 29, 2018
Impact of colonizing organism in the respiratory tract on the incidence, duration, and time between subsequent hospitalizations among patients with cystic fibrosis.
Journal: American journal of infection control
Published: September 11, 2018
Understanding of safety monitoring in clinical trials by individuals with CF or their parents: A qualitative analysis.
Journal: Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society
Published: September 15, 2017
Long-term treatment with oral N-acetylcysteine: affects lung function but not sputum inflammation in cystic fibrosis subjects. A phase II randomized placebo-controlled trial.
Journal: Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society
Published: May 06, 2014
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Last Updated: 09/26/2026