Maud M. Van Muilekom
Amsterdam, NH, Netherlands
Last Updated: 09/26/2026
Save publications for later
Sign Up
Not sure about your diagnosis?
Check Your Symptoms
Found 25 publications
Towards personalised follow-up care in ovarian cancer using online remote PROMs monitoring: a study protocol of a feasibility trial.
Journal: BMJ open
Published: March 20, 2026
Utilization of patient-reported outcome measures for women with low health literacy in gynecologic oncology - A mixed-methods study.
Journal: Gynecologic oncology
Published: November 18, 2025
Making sense of PROM outcomes: a mixed method study to optimize graphical visualization formats for children.
Journal: Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation
Published: October 07, 2025
Psychometric evaluation of Patient-Reported Outcomes Measurement Information System (PROMIS) in pediatric sickle cell disease in Europe.
Journal: European journal of pediatrics
Published: September 17, 2025
Patient education on PROM completion in clinical care settings: a scoping review.
Journal: Journal of patient-reported outcomes
Published: August 01, 2025
What Matters Most? Developing a Core Patient Reported Outcome Set for Individuals With Genetic Intellectual Disabilities: An International Delphi Study.
Journal: Journal of intellectual disability research : JIDR
Published: July 04, 2025
Patient reported outcomes that matter to individuals with (genetic) intellectual disabilities: a qualitative study.
Journal: Journal of neurodevelopmental disorders
Published: January 21, 2025
Patient reported outcomes used in clinical trials and core outcome sets for individuals with genetic intellectual disability: a scoping review.
Journal: Journal of neurodevelopmental disorders
Published: December 17, 2024
Changes in the quality of life of adults with sickle cell disease following allogeneic stem cell transplantation: A mixed-methods, prospective cohort study.
Journal: HemaSphere
Published: September 17, 2024
Fatigue in severe pediatric asthma patients: Results of the PANDA study.
Journal: Pediatric allergy and immunology : official publication of the European Society of Pediatric Allergy and Immunology
Published: July 08, 2024
Educating patients about patient-reported outcomes-are we there yet?
Journal: Journal of patient-reported outcomes
Published: March 07, 2024
PROs for RARE: protocol for development of a core patient reported outcome set for individuals with genetic intellectual disability.
Journal: Orphanet journal of rare diseases
Published: February 28, 2024
Last Updated: 09/26/2026