Mirthe J. Haneveld-Klein
Amsterdam, NH 1100DD, Netherlands
Last Updated: 09/26/2026
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Found 21 publications
Exploring Parents' Values in Healthcare Decision-Making for Rare Genetic Neurodevelopmental Disorders: A Qualitative Study to Inform Guideline Development.
Journal: Journal of intellectual disability research : JIDR
Published: July 31, 2025
Values of Individuals With Rare Genetic Neurodevelopmental Disorders and Their Family/Caregivers in Healthcare: A Scoping Review to Inform Guideline Development.
Journal: Journal of intellectual disability research : JIDR
Published: July 31, 2025
A qualitative study among guideline developers revealed challenges and strategies for rare disease guideline development.
Journal: Journal of clinical epidemiology
Published: June 17, 2025
Prioritizing topics for a Clinical Practice Guideline on SATB2-Associated Syndrome: Methodological rigor versus clinical usability.
Journal: Journal of clinical epidemiology
Published: June 13, 2025
Prioritizing topics for a clinical practice guideline on SATB2-associated syndrome: methodological rigor vs clinical usability.
Journal: Journal of clinical epidemiology
Published: June 13, 2025
Transition From Children's to Adults' Healthcare for Youth With (Genetic) Intellectual Disabilities: An ERN-ITHACA Guideline.
Journal: Journal of intellectual disability research : JIDR
Published: May 13, 2025
International Clinical Evidence-based Guideline for Kleefstra Syndrome.
Journal: Genetics in medicine : official journal of the American College of Medical Genetics
Published: February 14, 2025
International clinical evidence-based guideline for Kleefstra syndrome.
Journal: Genetics in medicine : official journal of the American College of Medical Genetics
Published: February 14, 2025
Oral antihypertensive treatment during pregnancy: a systematic review and network meta-analysis.
Journal: American journal of obstetrics and gynecology
Published: October 23, 2024
Priority-setting criteria for clinical practice guideline development on rare genetic neurodevelopmental disorders: a Delphi study within the European Reference Network ITHACA.
Journal: Journal of clinical epidemiology
Published: August 08, 2024
Supporting the continuous development and use of a patient partnership framework in European rare disease networks (ERNs): a scoping review of frameworks in the scientific literature.
Journal: Journal of community genetics
Published: August 07, 2024
Unravelling Education Needs for Clinical Practice Guideline Development: A Survey Performed in the Netherlands.
Journal: Journal of evaluation in clinical practice
Published: May 14, 2024
Last Updated: 09/26/2026