Monika Bullinger

Eppendorf, HH, Germany

Last Updated: 09/26/2026

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Found 112 publications

A patient empowerment program for primary immunodeficiency improves quality of life in children and adolescents.

A patient empowerment program for primary immunodeficiency improves quality of life in children and adolescents.

Journal: Immunotherapy

Published: July 29, 2024

Evaluation of the Health-Related Quality of Life and Mental Health of Parents With Children and Adolescents With a Rare Disease Based on the Results of a Randomized Controlled Trial to Investigate a Family-Based Intervention and an Online Intervention for Affected Families (CARE-FAM-NET).

Evaluation of the Health-Related Quality of Life and Mental Health of Parents With Children and Adolescents With a Rare Disease Based on the Results of a Randomized Controlled Trial to Investigate a Family-Based Intervention and an Online Intervention for Affected Families (CARE-FAM-NET).

Journal: Family process

Published: July 24, 2024

Cultural adaptation for Brazil of the Child Abuse and Neglect Reporting Self-Efficacy Questionnaire.

Cultural adaptation for Brazil of the Child Abuse and Neglect Reporting Self-Efficacy Questionnaire.

Journal: Revista brasileira de enfermagem

Published: May 29, 2024

Growth hormone treatment in children with short stature: impact of the diagnosis on parents.

Growth hormone treatment in children with short stature: impact of the diagnosis on parents.

Journal: Journal of pediatric endocrinology & metabolism : JPEM

Published: September 22, 2023

Evidence of validity of internal structure of the Functional Assessment of Chronic Illness Therapy-Spiritual Well-Being Scale (FACIT-Sp-12) in Brazilian adolescents with chronic health conditions.

Evidence of validity of internal structure of the Functional Assessment of Chronic Illness Therapy-Spiritual Well-Being Scale (FACIT-Sp-12) in Brazilian adolescents with chronic health conditions.

Journal: Frontiers in psychology

Published: July 11, 2022

Quality of Life and Experienced Distress of Patients Suspected of having a Rare (Chronic) Health Condition - Initial Findings from the ZSE-DUO Study

Quality of Life and Experienced Distress of Patients Suspected of having a Rare (Chronic) Health Condition - Initial Findings from the ZSE-DUO Study

Journal: Psychotherapie, Psychosomatik, medizinische Psychologie

Published: July 06, 2022

Quality of Life of Children and Adolescents with Short Stature: The Twofold Contribution of Physical Growth and Adaptive Height-Related Cognitive Beliefs.

Quality of Life of Children and Adolescents with Short Stature: The Twofold Contribution of Physical Growth and Adaptive Height-Related Cognitive Beliefs.

Journal: Journal of clinical psychology in medical settings

Published: April 10, 2022

Factors of family impact in a Swedish-German cohort of children born with esophageal atresia.

Factors of family impact in a Swedish-German cohort of children born with esophageal atresia.

Journal: Orphanet journal of rare diseases

Published: January 25, 2022

Psychometric Validation of the Haemo-QOL-A in Participants with Hemophilia A Treated with Gene Therapy.

Psychometric Validation of the Haemo-QOL-A in Participants with Hemophilia A Treated with Gene Therapy.

Journal: Patient related outcome measures

Published: January 20, 2022

Dual guidance structure for evaluation of patients with unclear diagnosis in centers for rare diseases (ZSE-DUO): study protocol for a controlled multi-center cohort study.

Dual guidance structure for evaluation of patients with unclear diagnosis in centers for rare diseases (ZSE-DUO): study protocol for a controlled multi-center cohort study.

Journal: Orphanet journal of rare diseases

Published: September 29, 2021

Rare pediatric diseases and pathways to psychosocial care: a qualitative interview study with professional experts working with affected families in Germany.

Rare pediatric diseases and pathways to psychosocial care: a qualitative interview study with professional experts working with affected families in Germany.

Journal: Orphanet journal of rare diseases

Published: September 06, 2021

Patient-Reported Outcomes-The Value of Observational Assessments.

Patient-Reported Outcomes-The Value of Observational Assessments.

Journal: European journal of pediatric surgery : official journal of Austrian Association of Pediatric Surgery ... [et al] = Zeitschrift fur Kinderchirurgie

Published: June 14, 2021

Showing 1-12 of 112

Last Updated: 09/26/2026