Nicole Gusset
Heimberg, BE 3627, Switzerland
Last Updated: 09/26/2026
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Found 13 publications
New pharmacotherapies for the erythropoietic protoporphyrias: an analysis of trial protocols from a patient perspective.
Journal: Orphanet journal of rare diseases
Published: May 08, 2025
A Systematic Literature Review of the Natural History of Respiratory, Swallowing, Feeding, and Speech Functions in Spinal Muscular Atrophy (SMA).
Journal: Journal of neuromuscular diseases
Published: June 29, 2024
Reverse Engineering of Digital Measures: Inviting Patients to the Conversation.
Journal: Digital biomarkers
Published: December 06, 2022
A Patient-Centered Evaluation of Meaningful Change on the 32-Item Motor Function Measure in Spinal Muscular Atrophy Using Qualitative and Quantitative Data.
Journal: Frontiers in neurology
Published: September 03, 2021
Title Not Found
Journal: Zeitschrift fur Evidenz, Fortbildung und Qualitat im Gesundheitswesen
Published: July 17, 2021
The need for evidence-based treatment decisions in spinal muscular atrophy type 0.
Journal: Annals of clinical and translational neurology
Published: March 28, 2021
A Decision for Life - Treatment decisions in newly diagnosed families with spinal muscular atrophy (SMA).
Journal: European journal of paediatric neurology : EJPN : official journal of the European Paediatric Neurology Society
Published: September 28, 2020
Understanding the relationship between the 32-item motor function measure and daily activities from an individual with spinal muscular atrophy and their caregivers' perspective: a two-part study.
Journal: BMC neurology
Published: September 25, 2020
Understanding European patient expectations towards current therapeutic development in spinal muscular atrophy.
Journal: Neuromuscular disorders : NMD
Published: August 26, 2020
Last Updated: 09/26/2026