Rebecca Dimond
Cardiff, WLS, United Kingdom
Last Updated: 09/26/2026
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Found 24 publications
Counseling patients in the predictive genetics clinic for Huntington's disease: A qualitative analysis of ethnographic observations.
Journal: Journal of genetic counseling
Published: October 10, 2025
Non-Directiveness and Authenticity in the Predictive Genetic Clinic.
Journal: Sociology of health & illness
Published: April 16, 2025
"My full-time unpaid role": Understanding the (extra)ordinary work of founders of rare disease organisations.
Journal: Social science & medicine (1982)
Published: June 30, 2024
Leading through the COVID-19 pandemic: Experiences of UK Executive Nurse Directors.
Journal: Journal of advanced nursing
Published: January 12, 2024
Predictive genetic testing for Huntington's disease: Exploring participant experiences of uncertainty and ambivalence between clinic appointments.
Journal: Journal of genetic counseling
Published: July 01, 2023
Making patients political: Narrating, curating, enacting, and navigating the 'idealised policy patient'.
Journal: Social science & medicine (1982)
Published: April 06, 2023
Genetic testing and family entanglements.
Journal: Social science & medicine (1982)
Published: August 06, 2021
Share and protect our health data: an evidence based approach to rare disease patients' perspectives on data sharing and data protection - quantitative survey and recommendations.
Journal: Orphanet journal of rare diseases
Published: March 26, 2019
Editorial: Towards a sociology of donation.
Journal: Sociology of health & illness
Published: March 08, 2019
Mitochondrial donation, patient engagement and narratives of hope.
Journal: Sociology of health & illness
Published: December 14, 2017
Comment on mitochondrial replacement techniques and the birth of the 'first'.
Journal: Journal of law and the biosciences
Published: April 29, 2017
Last Updated: 09/26/2026