Last Updated: 09/26/2026
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Found 23 publications
Cystic fibrosis care utilization from 2019-2023: a descriptive analysis of adult and pediatric CF care utilization in the post-ETI and post-pandemic Era.
Journal: Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society
Published: January 30, 2026
An EHR-based framework for modeling growth curves and constructing growth centile charts for genetic disorders.
Journal: NPJ genomic medicine
Published: December 12, 2025
Staying agile: Adapting care to meet changing healthcare needs of people with cystic fibrosis.
Journal: Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society
Published: September 09, 2024
Adapting the cystic fibrosis care model: Perspectives from people with CF, caregivers, and members of CF care teams.
Journal: Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society
Published: July 24, 2024
Cystic fibrosis foundation position paper: Redefining the CF care model.
Journal: Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society
Published: June 25, 2024
Cystic fibrosis foundation position paper: Redefining the cystic fibrosis care team.
Journal: Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society
Published: June 24, 2024
Longitudinal profiling of the intestinal microbiome in children with cystic fibrosis treated with elexacaftor-tezacaftor-ivacaftor.
Journal: mBio
Published: January 26, 2024
Prevalence, stability, and clinical significance of an isolated low FEV1 spirometry pattern in children.
Journal: Pediatric pulmonology
Published: December 12, 2023
Longitudinal Profiling of the Intestinal Microbiome in Children with Cystic Fibrosis Treated with Elexacaftor-Tezacaftor-Ivacaftor.
Journal: medRxiv : the preprint server for health sciences
Published: August 30, 2023
Gilbert's syndrome leads to elevated bilirubin after initiation of elexacaftor/tezacaftor/ivacaftor in people with cystic fibrosis.
Journal: Pediatric pulmonology
Published: June 26, 2023
The relationship between the intestinal microbiome and body mass index in children with cystic fibrosis.
Journal: Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society
Published: February 27, 2023
Prevalence, Risk Factors, and Sequelae of Asymptomatic Clostridioides difficile Colonization in Children with Cystic Fibrosis.
Journal: Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society
Published: October 20, 2022
Last Updated: 09/26/2026