Last Updated: 09/26/2026
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Found 25 publications
Embedding Palliative Care Clinicians in ALS Teams Improves ALS Clinicians' Confidence in Their Patient Management and Satisfaction With Palliative Care.
Journal: Muscle & nerve
Published: January 28, 2026
Shared burden of ultra-rare genetic variants across a spectrum of motor neuron diseases.
Journal: Translational neurodegeneration
Published: August 11, 2025
Patients' and Caregivers' Perceptions of Specialty Palliative Care for Amyotrophic Lateral Sclerosis: A Multicenter Evaluation.
Journal: Muscle & nerve
Published: June 01, 2025
Strengths and Opportunities: Clinicians' Perspectives on Palliative Care for Amyotrophic Lateral Sclerosis (ALS) in the United States.
Journal: Muscle & nerve
Published: February 26, 2025
Identifying the Unmet Needs of People Living With Amyotrophic Lateral Sclerosis: A National Survey to Inform Interdisciplinary Palliative Care.
Journal: The American journal of hospice & palliative care
Published: April 24, 2024
Quality-of-life assessment instruments used across ALS clinics.
Journal: Muscle & nerve
Published: June 09, 2023
Palliative Care Utilization in Burn Patients.
Journal: Journal of palliative medicine
Published: October 17, 2022
Effect of sodium phenylbutyrate/taurursodiol on tracheostomy/ventilation-free survival and hospitalisation in amyotrophic lateral sclerosis: long-term results from the CENTAUR trial.
Journal: Journal of neurology, neurosurgery, and psychiatry
Published: February 08, 2022
MN-166 (ibudilast) in amyotrophic lateral sclerosis in a Phase IIb/III study: COMBAT-ALS study design.
Journal: Neurodegenerative disease management
Published: November 24, 2021
Health Care Providers' Attitudes and Beliefs on Providing Palliative Care to Patients in Bahrain: Findings From a Qualitative Study.
Journal: Journal of pain and symptom management
Published: September 19, 2020
The NEALS primary lateral sclerosis registry.
Journal: Amyotrophic lateral sclerosis & frontotemporal degeneration
Published: September 11, 2020
Long-term survival of participants in the CENTAUR trial of sodium phenylbutyrate-taurursodiol in amyotrophic lateral sclerosis.
Journal: Muscle & nerve
Published: September 04, 2020
Last Updated: 09/26/2026