Sara Cannizzo

Pisa, Italy

Last Updated: 09/26/2026

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Found 20 publications

Patient partnership model in rare and complex rheumatological conditions: research and beyond in European Reference Network ReCONNET.

Patient partnership model in rare and complex rheumatological conditions: research and beyond in European Reference Network ReCONNET.

Journal: The Lancet. Rheumatology

Published: July 29, 2025

Patient partnership model in rare and complex rheumatological conditions: research and beyond in European Reference Network ReCONNET.

Patient partnership model in rare and complex rheumatological conditions: research and beyond in European Reference Network ReCONNET.

Journal: The Lancet. Rheumatology

Published: July 29, 2025

The Role of Digital Tools and Their Implementation Within Patient Care Pathways for Rare Brain Disorders: The Case of Phenylketonuria.

The Role of Digital Tools and Their Implementation Within Patient Care Pathways for Rare Brain Disorders: The Case of Phenylketonuria.

Journal: European journal of neurology

Published: July 04, 2025

The organizational dimension in rare and complex diseases care management: an application of RarERN Path© methodology in ataxias, dystonia and phenylketonuria.

The organizational dimension in rare and complex diseases care management: an application of RarERN Path© methodology in ataxias, dystonia and phenylketonuria.

Journal: BMC health services research

Published: December 20, 2024

Improving organisation to improve care: ERN ReCONNET organisational reference model for systemic sclerosis patients' care pathway.

Improving organisation to improve care: ERN ReCONNET organisational reference model for systemic sclerosis patients' care pathway.

Journal: Journal of scleroderma and related disorders

Published: June 03, 2024

Long-term outcomes of COVID-19 vaccination in patients with rare and complex connective tissue diseases: The ERN-ReCONNET VACCINATE study.

Long-term outcomes of COVID-19 vaccination in patients with rare and complex connective tissue diseases: The ERN-ReCONNET VACCINATE study.

Journal: Journal of translational autoimmunity

Published: September 07, 2023

The COVID-19 pandemic impact on continuity of care provision on rare brain diseases and on ataxias, dystonia and PKU. A scoping review.

The COVID-19 pandemic impact on continuity of care provision on rare brain diseases and on ataxias, dystonia and PKU. A scoping review.

Journal: Orphanet journal of rare diseases

Published: May 12, 2023

Publisher Correction: The impact of COVID-19 on rare and complex connective tissue diseases: the experience of ERN ReCONNET.

Publisher Correction: The impact of COVID-19 on rare and complex connective tissue diseases: the experience of ERN ReCONNET.

Journal: Nature reviews. Rheumatology

Published: October 06, 2022

State of the art and future directions in assessing the quality of life in rare and complex connective tissue and musculoskeletal diseases.

State of the art and future directions in assessing the quality of life in rare and complex connective tissue and musculoskeletal diseases.

Journal: Frontiers in medicine

Published: July 04, 2022

Exploring disease perception in Behçet's syndrome: combining a quantitative and a qualitative study based on a narrative medicine approach.

Exploring disease perception in Behçet's syndrome: combining a quantitative and a qualitative study based on a narrative medicine approach.

Journal: Orphanet journal of rare diseases

Published: June 14, 2022

An Opportunity to Harmonise the Approach to Patients' Care Pathways for Rare and Complex Diseases: RarERN Path™.

An Opportunity to Harmonise the Approach to Patients' Care Pathways for Rare and Complex Diseases: RarERN Path™.

Journal: Frontiers in health services

Published: May 05, 2022

An overlook on the current registries for rare and complex connective tissue diseases and the future scenario of TogethERN ReCONNET.

An overlook on the current registries for rare and complex connective tissue diseases and the future scenario of TogethERN ReCONNET.

Journal: Frontiers in medicine

Published: March 04, 2022

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Last Updated: 09/26/2026