Sarah-grace Paguinto

Sydney, NSW, Australia

Last Updated: 09/26/2026

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Found 10 publications

Adaptive functioning in school-aged children with spinal muscular atrophy in the treatment era: a non-randomised cohort study.

Adaptive functioning in school-aged children with spinal muscular atrophy in the treatment era: a non-randomised cohort study.

Journal: The Lancet regional health. Western Pacific

Published: January 13, 2026

Strengthening adaptive functioning and participation in the contemporary spinal muscular atrophy paradigm: clinical perspectives and future directions.

Strengthening adaptive functioning and participation in the contemporary spinal muscular atrophy paradigm: clinical perspectives and future directions.

Journal: World journal of pediatrics : WJP

Published: December 19, 2025

"The ability to get ahead": Australian parent perspectives on genomics in newborn screening and considerations for potential models of care.

"The ability to get ahead": Australian parent perspectives on genomics in newborn screening and considerations for potential models of care.

Journal: European journal of human genetics : EJHG

Published: June 24, 2025

"Jumping too far ahead": Australian healthcare professional, scientist, and policy maker perspectives on using genomics in newborn screening.

"Jumping too far ahead": Australian healthcare professional, scientist, and policy maker perspectives on using genomics in newborn screening.

Journal: European journal of human genetics : EJHG

Published: June 23, 2025

Getting Wheels: development and evaluation of a psychoeducational resource for parents of children with a neuromuscular condition following recommendation of wheelchair equipment.

Getting Wheels: development and evaluation of a psychoeducational resource for parents of children with a neuromuscular condition following recommendation of wheelchair equipment.

Journal: Disability and rehabilitation. Assistive technology

Published: February 03, 2024

Multidisciplinary perspectives and practices of wheelchair prescription for children with neuromuscular conditions.

Multidisciplinary perspectives and practices of wheelchair prescription for children with neuromuscular conditions.

Journal: Disability and rehabilitation. Assistive technology

Published: November 04, 2020

"The Whole Game is Changing and You've Got Hope": Australian Perspectives on Treatment Decision Making in Spinal Muscular Atrophy.

"The Whole Game is Changing and You've Got Hope": Australian Perspectives on Treatment Decision Making in Spinal Muscular Atrophy.

Journal: The patient

Published: April 09, 2020

"It's not just the wheelchair, it's everything else": Australian parents' perspectives of wheelchair prescription for children with neuromuscular disorders.

"It's not just the wheelchair, it's everything else": Australian parents' perspectives of wheelchair prescription for children with neuromuscular disorders.

Journal: Disability and rehabilitation

Published: April 23, 2019

Parents' perceptions of power wheelchair prescription for children with a neuromuscular disorder: a scoping review.

Parents' perceptions of power wheelchair prescription for children with a neuromuscular disorder: a scoping review.

Journal: Disability and rehabilitation

Published: June 19, 2018

Financial, opportunity and psychosocial costs of spinal muscular atrophy: an exploratory qualitative analysis of Australian carer perspectives.

Financial, opportunity and psychosocial costs of spinal muscular atrophy: an exploratory qualitative analysis of Australian carer perspectives.

Journal: BMJ open

Published: May 26, 2018

Showing 1-10 of 10

Last Updated: 09/26/2026