Sylvia Von Mackensen

Eppendorf, HH, Germany

Last Updated: 09/26/2026

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Found 73 publications

Health-related quality of life in adults with von Willebrand disease: results of the French real-life Willebrand study on health-related quality of life.

Health-related quality of life in adults with von Willebrand disease: results of the French real-life Willebrand study on health-related quality of life.

Journal: Research and practice in thrombosis and haemostasis

Published: December 12, 2025

Safety, efficacy, and patient-reported outcomes 6 years after fidanacogene elaparvovec in adults with hemophilia B.

Safety, efficacy, and patient-reported outcomes 6 years after fidanacogene elaparvovec in adults with hemophilia B.

Journal: Blood advances

Published: November 21, 2025

Safety, efficacy and patient-reported outcomes 6 years after fidanacogene elaparvovec in adults with hemophilia B.

Safety, efficacy and patient-reported outcomes 6 years after fidanacogene elaparvovec in adults with hemophilia B.

Journal: Blood advances

Published: November 21, 2025

Hemophilia Severity and Its Association With Mental Health and Health-Related Quality of Life-Results From a Cross-Sectional Multicenter Study.

Hemophilia Severity and Its Association With Mental Health and Health-Related Quality of Life-Results From a Cross-Sectional Multicenter Study.

Journal: Haemophilia : the official journal of the World Federation of Hemophilia

Published: October 16, 2025

Health-related quality of life in adults with hemophilia B after gene therapy with fidanacogene elaparvovec: results from the BENEGENE-2 trial.

Health-related quality of life in adults with hemophilia B after gene therapy with fidanacogene elaparvovec: results from the BENEGENE-2 trial.

Journal: Journal of thrombosis and haemostasis : JTH

Published: April 17, 2025

HAEMFIX: Impact of Switching From SHL-FIX to EHL-FIX in Patients With Haemophilia B.

HAEMFIX: Impact of Switching From SHL-FIX to EHL-FIX in Patients With Haemophilia B.

Journal: Haemophilia : the official journal of the World Federation of Hemophilia

Published: April 17, 2025

Subjective Physical Performance and Its Determinants in Patients With Haemophilia.

Subjective Physical Performance and Its Determinants in Patients With Haemophilia.

Journal: Haemophilia : the official journal of the World Federation of Hemophilia

Published: December 29, 2024

Concizumab prophylaxis in people with hemophilia A or B without inhibitors: patient-reported outcome results from the phase 3 explorer8 study.

Concizumab prophylaxis in people with hemophilia A or B without inhibitors: patient-reported outcome results from the phase 3 explorer8 study.

Journal: Research and practice in thrombosis and haemostasis

Published: December 23, 2024

Health-Related Quality of Life in Adult Patients With von Willebrand Disease From Germany: Results of the WIL-QoL Study.

Health-Related Quality of Life in Adult Patients With von Willebrand Disease From Germany: Results of the WIL-QoL Study.

Journal: Haemophilia : the official journal of the World Federation of Hemophilia

Published: November 26, 2024

Clinical, Obstetric-Gynaecological and HRQoL Data of Female VWD Patients in the WIL-QoL Study.

Clinical, Obstetric-Gynaecological and HRQoL Data of Female VWD Patients in the WIL-QoL Study.

Journal: Haemophilia : the official journal of the World Federation of Hemophilia

Published: November 26, 2024

Health-related quality of life in children with von Willebrand disease: results of the French real-life Willebrand Study Health-related Quality of Life study.

Health-related quality of life in children with von Willebrand disease: results of the French real-life Willebrand Study Health-related Quality of Life study.

Journal: Journal of thrombosis and haemostasis : JTH

Published: November 09, 2024

Concizumab prophylaxis in persons with hemophilia A or B with inhibitors: patient-reported outcome results from the phase 3 explorer7 study.

Concizumab prophylaxis in persons with hemophilia A or B with inhibitors: patient-reported outcome results from the phase 3 explorer7 study.

Journal: Research and practice in thrombosis and haemostasis

Published: February 06, 2024

Showing 1-12 of 73

Last Updated: 09/26/2026