Last Updated: 09/26/2026
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Found 5 publications
Transforming Objective Participatory Patient Advocacy.
Journal: Therapeutic innovation & regulatory science
Published: May 01, 2025
Meeting report: the ALPHA project: a stakeholder meeting on lupus clinical trial outcome measures and the patient perspective.
Journal: Lupus science & medicine
Published: January 18, 2023
The ALPHA Project: Establishing consensus and prioritisation of global community recommendations to address major challenges in lupus diagnosis, care, treatment and research.
Journal: Lupus science & medicine
Published: August 10, 2020
Unique Burdens of Pediatric Clinical Trials in Duchenne Muscular Dystrophy, April 20-21, 2017, Bethesda, Maryland, USA.
Journal: Therapeutic innovation & regulatory science
Published: May 02, 2018
How a patient advocacy group developed the first proposed draft guidance document for industry for submission to the U.S. Food and Drug Administration.
Journal: Orphanet journal of rare diseases
Published: February 26, 2015
Showing 1-5 of 5
Last Updated: 09/26/2026