Last Updated: 09/26/2026
Save publications for later
Sign Up
Not sure about your diagnosis?
Check Your Symptoms
Found 54 publications
Research agenda and related workforce requirements inspired by Lived Experience Experts and grounded in health equity for the Bleeding Disorders Research Collaborative.
Journal: Expert review of hematology
Published: August 07, 2026
Approaches to Identify People With Haemophilia With Medicare Claims Data.
Journal: Haemophilia : the official journal of the World Federation of Hemophilia
Published: July 22, 2025
A plain language summary on indirectly comparing bleeding after valoctocogene roxaparvovec gene therapy to bleeding with emicizumab prophylaxis.
Journal: Expert review of hematology
Published: March 17, 2025
Safety and Effectiveness of Emicizumab in People With Haemophilia A Enrolled in the ATHN 7 Haemophilia Natural History Study.
Journal: Haemophilia : the official journal of the World Federation of Hemophilia
Published: January 30, 2025
Pain Reduction Following Eptacog Beta Treatment of Bleeding Episodes in Adolescents and Adults With Haemophilia A or B Complicated by Inhibitors.
Journal: Haemophilia : the official journal of the World Federation of Hemophilia
Published: January 08, 2025
Global patterns of hemophilia drug trials, hemophilia care, and health care measures.
Journal: Research and practice in thrombosis and haemostasis
Published: December 02, 2024
Cancer-Associated Venous Thromboembolic Disease, Version 2.2024, NCCN Clinical Practice Guidelines in Oncology.
Journal: Journal of the National Comprehensive Cancer Network : JNCCN
Published: September 05, 2024
Pain-Related Quality of Life Outcomes in People With Haemophilia A Receiving Emicizumab: A Post Hoc Analysis of the HAVEN 1, 3 and 4 and STASEY Studies.
Journal: Haemophilia : the official journal of the World Federation of Hemophilia
Published: June 27, 2024
Differences and similarities in patient-reported outcomes among men and women with haemophilia.
Journal: Haemophilia : the official journal of the World Federation of Hemophilia
Published: March 29, 2024
A Case of Fetal-Induced Graft-versus-Host Disease.
Journal: The New England journal of medicine
Published: August 16, 2023
Effect of etranacogene dezaparvovec on quality of life for severe and moderately severe haemophilia B participants: Results from the phase III HOPE-B trial 2 years after gene therapy.
Journal: Haemophilia : the official journal of the World Federation of Hemophilia
Published: June 13, 2023
Building the foundation for a community-generated national research blueprint for inherited bleeding disorders: research priorities in health services; diversity, equity, and inclusion; and implementation science.
Journal: Expert review of hematology
Published: March 15, 2023
Last Updated: 09/26/2026