Westerly Luth

Edmonton, AB, Canada

Last Updated: 09/26/2026

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Found 15 publications

Patient-based evidence for amyotrophic lateral sclerosis prognostic health communication: "the clock is ticking…how long do I have?"

Patient-based evidence for amyotrophic lateral sclerosis prognostic health communication: "the clock is ticking…how long do I have?"

Journal: Amyotrophic lateral sclerosis & frontotemporal degeneration

Published: November 20, 2025

Challenges and opportunities for expediting ALS diagnosis in Alberta, Canada: a human-centred design approach.

Challenges and opportunities for expediting ALS diagnosis in Alberta, Canada: a human-centred design approach.

Journal: BMJ open

Published: September 26, 2025

Asymmetry and Alignment: Physician Perspective on Patient-Based Evidence for Improving Health Communication.

Asymmetry and Alignment: Physician Perspective on Patient-Based Evidence for Improving Health Communication.

Journal: The Canadian journal of neurological sciences. Le journal canadien des sciences neurologiques

Published: September 02, 2025

Comprehensive analysis platform to understand, remedy, and eliminate amyotrophic lateral sclerosis (CAPTURE ALS): Study protocol for a Canadian multicenter, multimodal, longitudinal observational study.

Comprehensive analysis platform to understand, remedy, and eliminate amyotrophic lateral sclerosis (CAPTURE ALS): Study protocol for a Canadian multicenter, multimodal, longitudinal observational study.

Journal: PloS one

Published: April 11, 2025

Patient engagement in research: lessons learned from CAPTURE ALS, a longitudinal observational ALS study.

Patient engagement in research: lessons learned from CAPTURE ALS, a longitudinal observational ALS study.

Journal: Amyotrophic lateral sclerosis & frontotemporal degeneration

Published: March 23, 2024

What do people affected by amyotrophic lateral sclerosis want from health communications? Evidence from the ALS Talk Project.

What do people affected by amyotrophic lateral sclerosis want from health communications? Evidence from the ALS Talk Project.

Journal: Muscle & nerve

Published: March 28, 2023

Assessing the Measurement Properties of the Self-Administered Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised (ALSFRS-R): A Rasch Analysis.

Assessing the Measurement Properties of the Self-Administered Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised (ALSFRS-R): A Rasch Analysis.

Journal: Physical therapy

Published: November 26, 2022

Asynchronous online focus groups for research with people living with amyotrophic lateral sclerosis and family caregivers: usefulness, acceptability and lessons learned.

Asynchronous online focus groups for research with people living with amyotrophic lateral sclerosis and family caregivers: usefulness, acceptability and lessons learned.

Journal: BMC medical research methodology

Published: September 29, 2022

Amyotrophic lateral sclerosis (ALS) health charities are central to ALS care: perspectives of Canadians affected by ALS.

Amyotrophic lateral sclerosis (ALS) health charities are central to ALS care: perspectives of Canadians affected by ALS.

Journal: Amyotrophic lateral sclerosis & frontotemporal degeneration

Published: September 16, 2022

Refining items for a preference-based, amyotrophic lateral sclerosis specific, health-related quality of life scale.

Refining items for a preference-based, amyotrophic lateral sclerosis specific, health-related quality of life scale.

Journal: Amyotrophic lateral sclerosis & frontotemporal degeneration

Published: February 11, 2022

Covid-19 threat and coping: application of protection motivation theory to the pandemic experiences of people affected by amyotrophic lateral sclerosis.

Covid-19 threat and coping: application of protection motivation theory to the pandemic experiences of people affected by amyotrophic lateral sclerosis.

Journal: BMC neurology

Published: December 14, 2021

Communication About End of Life for Patients Living With Amyotrophic Lateral Sclerosis: A Scoping Review of the Empirical Evidence.

Communication About End of Life for Patients Living With Amyotrophic Lateral Sclerosis: A Scoping Review of the Empirical Evidence.

Journal: Frontiers in neurology

Published: March 20, 2021

Showing 1-12 of 15

Last Updated: 09/26/2026