Willemijn E. Irvine
Breda, NB, Netherlands
Last Updated: 09/26/2026
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Found 18 publications
ERNICA evidence based guideline on omphalocele.
Journal: Orphanet journal of rare diseases
Published: November 16, 2025
ERNICA evidence based guideline on omphalocele.
Journal: Orphanet journal of rare diseases
Published: November 16, 2025
Enhancing rare disease guideline development with real-world data: a method evaluation.
Journal: BMC medical research methodology
Published: November 04, 2025
Fostering continuous quality improvement in a European rare disease network: Where are we now?
Journal: Orphanet journal of rare diseases
Published: October 03, 2025
Updated European Reference Network for rare Inherited and Congenital Digestive and Gastrointestinal Anomalies guidelines for the management of rectosigmoid Hirschsprung's disease 2025.
Journal: Journal of pediatric gastroenterology and nutrition
Published: September 24, 2025
A qualitative study among guideline developers revealed challenges and strategies for rare disease guideline development.
Journal: Journal of clinical epidemiology
Published: June 17, 2025
Fostering continuous quality improvement in a European rare disease network.
Journal: Frontiers in health services
Published: April 09, 2025
A Consensus Study on the Competencies of Nurse Specialists Providing Care for Craniofacial and Cleft Lip and Palate Patients.
Journal: The Journal of craniofacial surgery
Published: February 26, 2025
Development of a core outcome set for paediatric achalasia: a joint ERNICA, ESPGHAN and EUPSA study protocol.
Journal: BMJ paediatrics open
Published: October 15, 2024
ERN eUROGEN Guidelines on the Management of Anorectal Malformations Part I: Diagnostics.
Journal: European journal of pediatric surgery : official journal of Austrian Association of Pediatric Surgery ... [et al] = Zeitschrift fur Kinderchirurgie
Published: October 11, 2024
ERN eUROGEN Guidelines on the Management of Anorectal Malformations, Part IV: Organization of Care and Communication between Providers.
Journal: European journal of pediatric surgery : official journal of Austrian Association of Pediatric Surgery ... [et al] = Zeitschrift fur Kinderchirurgie
Published: October 11, 2024
European Reference Network eUROGEN Guidelines on the Management of Anorectal Malformations, Part II: Treatment.
Journal: European journal of pediatric surgery : official journal of Austrian Association of Pediatric Surgery ... [et al] = Zeitschrift fur Kinderchirurgie
Published: September 19, 2024
Last Updated: 09/26/2026