Myasthenia Gravis Foundation of America Global MG Patient Registry

Status: Recruiting
Location: See location...
Study Type: Observational
SUMMARY

The goal of this observational study is to learn about the experiences of people living with Myasthenia Gravis (MG) in the United States. The main questions it aims to answer are: * How and when are people with MG diagnosed? * What are the most common symptoms associated with MG? * What treatments are being used to treat MG? * What are the impacts of MG on activities of daily living, employment and quality of life? * What are the experiences with exacerbation, hospitalization and healthcare access for people with MG? Participants will answer a survey to enroll in the study, and be invited to fill out an update survey twice a year.

Eligibility
Participation Requirements
Sex: All
Minimum Age: 18
Healthy Volunteers: f
View:

• age over 18

• positive MG diagnosis

Locations
United States
Massachusetts
Myasthenia Gravis Foundation of America
RECRUITING
Westborough
Contact Information
Primary
National Director, Patient Registry
gmvalo@myasthenia.org
8005415454
Time Frame
Start Date: 2013-10-12
Estimated Completion Date: 2029-09-19
Participants
Target number of participants: 3800
Treatments
Participants
Those with Myasthenia Gravis
Sponsors
Leads: Myasthenia Gravis Foundation of America
Collaborators: Alira Health

This content was sourced from clinicaltrials.gov