Foundation for Sarcoidosis Research Advanced Cures Registry (FSR-SARC Registry)

Status: Recruiting
Location: See location...
Intervention Type: Other
Study Type: Observational
SUMMARY

The goal of the study is to create a longitudinal record of patient reported outcomes for people living with sarcoidosis that maintains privacy. Patients report on the following: demographics, disease symptoms, diagnostic journey, provider experience, disease treatment, and burden of disease. Patients can also link their Electronic Health Records (EHR). The goal is to create a natural history of sarcoidosis, support research, and better understand the needs of the sarcoidosis community.

Eligibility
Participation Requirements
Sex: All
Minimum Age: 7
Healthy Volunteers: t
View:

• English speaking

• Consent

• Sarcoidosi diagnosis -

Locations
United States
Illinois
Foundation For Sarcoidosis Research
RECRUITING
Chicago
Contact Information
Primary
Leslie Serhuck, MD MA Mbioethics
info@stopsarcoidosis.org
312-341-0500
Backup
Tricha Shivas, MBe
tricha@stopsarcoidosis.org
312-341-0500
Time Frame
Start Date: 2013-07
Estimated Completion Date: 2033-07
Participants
Target number of participants: 6833
Related Therapeutic Areas
Sponsors
Leads: Foundation for Sarcoidosis Research

This content was sourced from clinicaltrials.gov