Adaption and Testing of the Quality of Life in Short Stature Youth (QoLISSY) Questionnaire for Parents With Children From 0-4
Status: Unknown
Location: See location...
Intervention Type: Other
Study Type: Observational
SUMMARY
The aim of the study is the adaption, implementation and validation of the instrument for the investigation of the short stature specific quality of life (QoLISSY) for children (age 0-4 years) with achondroplasia (ACH), Small for Gestational Age (SGA) and Growth Hormone Deficiency (GHD) from a parental perspective.
Eligibility
Participation Requirements
Sex: All
Minimum Age: 18
Healthy Volunteers: f
View:
• Parents of children aged 0-4 with the diagnosis Achondroplaisa, Short for Gestational Age or Growth Hormone Defiency
Locations
Other Locations
Germany
University Medical Center Hamburg-Eppendorf
RECRUITING
Hamburg
Contact Information
Primary
Julia Quitmann, Dipl. Psych.
j.quitmann@uke.de
+49 (040) 74 10 52 789
Time Frame
Start Date: 2022-03-01
Completion Date: 2023-12-31
Participants
Target number of participants: 168
Related Therapeutic Areas
Sponsors
Leads: Universitätsklinikum Hamburg-Eppendorf
Collaborators: Pfizer, Bundesverband Kleinwüchsige Menschen und ihre Familien e.V.