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    Last Updated: 10/30/2025

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    MediFind found 32 doctor with experience in Acheiropody near The United States. Of these, 24 are Experienced, 6 are Advanced and 2 are Distinguished.

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    LocationClose
    32 providers found
      Distinguished in Acheiropody
      Pediatrics | Medical Genetics
      Distinguished in Acheiropody
      Pediatrics | Medical Genetics
      34th St. & Civic Center Blvd, The Children's Hospital Of Philadelphia, Room 9nw55, 
      Philadelphia, PA 
      Languages Spoken:
      English

      Elizabeth Bhoj is a Pediatrics specialist and a Medical Genetics provider in Philadelphia, Pennsylvania. Dr. Bhoj is rated as a Distinguished provider by MediFind in the treatment of Acheiropody. Her top areas of expertise are Hardikar Syndrome, Coffin-Siris Syndrome, Acheiropody, Hypotonia, and Myringotomy.

      Distinguished in Acheiropody
      Medical Genetics | Pediatrics
      Distinguished in Acheiropody
      Medical Genetics | Pediatrics

      Childrens Health Care Associates Inc

      3401 Civic Ctr Blvd, 
      Philadelphia, PA 
      Languages Spoken:
      English

      Elaine Zackai is a Medical Genetics specialist and a Pediatrics provider in Philadelphia, Pennsylvania. Dr. Zackai is rated as a Distinguished provider by MediFind in the treatment of Acheiropody. Her top areas of expertise are Micrognathia, DiGeorge Syndrome, Hardikar Syndrome, Myringotomy, and Gastrostomy.

      Experienced in Acheiropody
      Pediatrics | Medical Genetics
      Experienced in Acheiropody
      Pediatrics | Medical Genetics

      Pediatrics And Genetics

      3180 North Point Parkway, Suite 202, 
      Alpharetta, GA 
      Languages Spoken:
      English, Malay, Spanish, Tamil
      Accepting New Patients
      Offers Telehealth

      Vidya Krishnamurthy is a Pediatrics specialist and a Medical Genetics provider in Alpharetta, Georgia. Dr. Krishnamurthy is rated as an Experienced provider by MediFind in the treatment of Acheiropody. Her top areas of expertise are Early Infantile Epileptic Encephalopathy, HNRNPH2-Related Disorder, Learman Syndrome, and Dysostosis Peripheral. Dr. Krishnamurthy is currently accepting new patients.

      Learn about our expert tiers
      Advanced in Acheiropody
      Pediatrics | Medical Genetics
      Advanced in Acheiropody
      Pediatrics | Medical Genetics
      5323 Harry Hines Blvd, 
      Dallas, TX 
      Languages Spoken:
      English

      Garrett Gotway is a Pediatrics specialist and a Medical Genetics provider in Dallas, Texas. Dr. Gotway is rated as an Advanced provider by MediFind in the treatment of Acheiropody. His top areas of expertise are Bardet-Biedl Syndrome, Cockayne Syndrome Type 1, Athabaskan Brain Stem Dysgenesis, and Yunis-Varon Syndrome.

      Advanced in Acheiropody
      Pediatrics | Medical Genetics
      Advanced in Acheiropody
      Pediatrics | Medical Genetics
      1500 Highland Ave, 
      Madison, WI 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Philip Giampietro is a Pediatrics specialist and a Medical Genetics provider in Madison, Wisconsin. Dr. Giampietro is rated as an Advanced provider by MediFind in the treatment of Acheiropody. His top areas of expertise are Arthrogryposis Multiplex Congenita, Congenital Contractures, VACTERL Association, and FG Syndrome. Dr. Giampietro is currently accepting new patients.

      Advanced in Acheiropody
      Medical Genetics | Pediatrics
      Advanced in Acheiropody
      Medical Genetics | Pediatrics

      The General Hospital Corporation

      55 Fruit St, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Angela Lin is a Medical Genetics specialist and a Pediatrics provider in Boston, Massachusetts. Dr. Lin is rated as an Advanced provider by MediFind in the treatment of Acheiropody. Her top areas of expertise are Myhre Syndrome, Turner Syndrome, Intersex, Undescended Testicle, and Hormone Replacement Therapy (HRT). Dr. Lin is currently accepting new patients.

      Advanced in Acheiropody
      Medical Genetics | Pediatrics
      Advanced in Acheiropody
      Medical Genetics | Pediatrics

      Washington University

      1 Childrens Pl, 
      Saint Louis, MO 
      Experience:
      10+ years
      Languages Spoken:
      English
      Accepting New Patients

      Catherine Gooch is a Medical Genetics specialist and a Pediatrics provider in Saint Louis, Missouri. Dr. Gooch has been practicing medicine for over 10 years and is rated as an Advanced provider by MediFind in the treatment of Acheiropody. Her top areas of expertise are Ohdo Syndrome, Say-Barber-Biesecker-Young-Simpson Variant, Sandhaus Ben-Ami Syndrome, Rommen Mueller Sybert Syndrome, and Acheiropody. Dr. Gooch is currently accepting new patients.

      Advanced in Acheiropody
      Medical Genetics
      Advanced in Acheiropody
      Medical Genetics

      Nemours DuPont Hospital For Children

      1600 Rockland Road, Department Of General Pediatrics, 
      Wilmington, DE 
      Languages Spoken:
      English

      Karen Gripp is a Medical Genetics provider in Wilmington, Delaware. Dr. Gripp is rated as an Advanced provider by MediFind in the treatment of Acheiropody. Her top areas of expertise are Costello Syndrome, RASopathies, Noonan Syndrome, and Cardiofaciocutaneous Syndrome.

      Advanced in Acheiropody
      Medical Genetics | Pediatrics
      Advanced in Acheiropody
      Medical Genetics | Pediatrics
      3401 Civic Center Blvd, 9nw63, 
      Philadelphia, PA 
      Languages Spoken:
      English

      Dena Matalon is a Medical Genetics specialist and a Pediatrics provider in Philadelphia, Pennsylvania. Dr. Matalon is rated as an Advanced provider by MediFind in the treatment of Acheiropody. Her top areas of expertise are Campomelia Cumming Type, Coffin-Lowry Syndrome, Microcephaly Deafness Syndrome, and Nevoid Basal Cell Carcinoma Syndrome.

      David B. Everman
      Experienced in Acheiropody
      Medical Genetics
      Experienced in Acheiropody
      Medical Genetics

      Greenwood Genetic Center– Greenville

      14 Edgewood Drive, 
      Greenville, SC 
      Languages Spoken:
      English
      Accepting New Patients

      David Everman is a Medical Genetics provider in Greenville, South Carolina. Dr. Everman is rated as an Experienced provider by MediFind in the treatment of Acheiropody. His top areas of expertise are Johanson-Blizzard Syndrome, Chromosome 2p Duplication, Aplasia Cutis Congenita, and Ectodermal Dysplasias. Dr. Everman is currently accepting new patients.

      Suneeta Madan
      Experienced in Acheiropody
      Experienced in Acheiropody

      Medical Genetics In Lawrenceville

      4401 Penn Avenue, 
      Pittsburgh, PA 
      Languages Spoken:
      English, Hindi

      Suneeta Madan-Khetarpal, MD, is a clinical geneticist and is certified in clinical genetics, clinical cytogenetics, clinical molecular genetics, clinical medical biochemical genetics, and pediatrics by the American Board of Medical Genetics and Genomics and the American Board of Pediatrics respectively. She is also associate professor of pediatrics, ophthalmology, and human genetics at the Graduate School of Public Health at the University of Pittsburgh School of Medicine. Dr. Madan is rated as an Experienced provider by MediFind in the treatment of Acheiropody. Her top areas of expertise are 1p36 Deletion Syndrome, Micrognathia, Mosaicism, and Miller Syndrome.

      Candice P. Holden
      Experienced in Acheiropody
      Orthopedics | Pediatric Orthopedics
      Experienced in Acheiropody
      Orthopedics | Pediatric Orthopedics

      Arthritis & Sports | Orthopaedics, Physical Therapy & Wellness

      21475 Ridgetop Cir, Suite 150, 
      Sterling, VA 
      Experience:
      23+ years
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Dr. Candice Holden is a board-certified orthopaedic surgeon who has been with Arthritis & Sports in the Sterling and South Riding offices since 2022. She has over twenty years of experience specializing in the non-operative and surgical treatment of pediatric patients with orthopaedic disorders and injuries. After graduating from medical school at University of Southern California's School of Medicine, she completed her orthopaedic residency training at LAC & USC Medical Center. After residency training, Dr. Holden completed her pediatric orthopaedic surgery fellowship at the Alfred I DuPont Hospital for Children.Throughout her training, Dr. Holden has learned to utilize a multi-disciplinary approach spanning a range of clinical practice to help her diagnose, treat, and care for her young patients. She treats a variety of conditions, from broken bones and sports injuries to complex cases.In addition to her work at Arthritis & Sports Orthopaedics & Physical Therapy, Dr. Holden is affiliated with Shriners Hospital for Children and holds privileges at Baystate Medical Center.Dr. Holden is board-certified by the American Board of Orthopaedic Surgery. She is a member of the American Academy of Orthopaedic Surgeons (AAOS) and the Pediatric Orthopaedic Society of North America (POSNA). Dr. Holden is rated as an Experienced provider by MediFind in the treatment of Acheiropody. Her top areas of expertise are Clubfoot, Claw Foot, Absence of Tibia, and Knock Knees.

      Experienced in Acheiropody
      Medical Genetics
      Experienced in Acheiropody
      Medical Genetics

      Sequence MD

      1601 E 19th Ave, Suite 6450, 
      Denver, CO 
      Languages Spoken:
      English
      Offers Telehealth

      Patrick Long is a Medical Genetics provider in Denver, Colorado. Dr. Long is rated as an Experienced provider by MediFind in the treatment of Acheiropody. His top areas of expertise are Femur Fibula Ulna Syndrome, Acheiropody, Dysostosis Peripheral, and Dysplasia Epiphysealis Hemimelica.

      Experienced in Acheiropody
      Medical Genetics | Pediatrics
      Experienced in Acheiropody
      Medical Genetics | Pediatrics
      4800 Sand Point Way Ne, 
      Seattle, WA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Michael Bamshad is a Medical Genetics specialist and a Pediatrics provider in Seattle, Washington. Dr. Bamshad is rated as an Experienced provider by MediFind in the treatment of Acheiropody. His top areas of expertise are Distal Arthrogryposis Type 6, Distal Arthrogryposis, Arthrogryposis Multiplex Congenita, and Congenital Contractures. Dr. Bamshad is currently accepting new patients.

      Experienced in Acheiropody
      Medical Genetics | Pediatrics
      Experienced in Acheiropody
      Medical Genetics | Pediatrics
      Children's Hospital - Genetics, 200 Henry Clay Avenue, 
      New Orleans, LA 
      Languages Spoken:
      English

      Yves Lacassie is a Medical Genetics specialist and a Pediatrics provider in New Orleans, Louisiana. Dr. Lacassie is rated as an Experienced provider by MediFind in the treatment of Acheiropody. His top areas of expertise are Crouzon Syndrome, Learman Syndrome, Ring Chromosome 13, and Multiple Synostoses Syndrome 1.

      Experienced in Acheiropody
      Pediatrics | Medical Genetics
      Experienced in Acheiropody
      Pediatrics | Medical Genetics
      300 Longwood Ave, Fegan 10, 
      Boston, MA 
      Languages Spoken:
      English

      Fowzan Alkuraya is a Pediatrics specialist and a Medical Genetics provider in Boston, Massachusetts. Dr. Alkuraya is rated as an Experienced provider by MediFind in the treatment of Acheiropody. His top areas of expertise are Achalasia Microcephaly Syndrome, Microcephaly, Early Infantile Epileptic Encephalopathy, Cortical Dysplasia, and Vitrectomy.

      Experienced in Acheiropody
      Medical Genetics
      Experienced in Acheiropody
      Medical Genetics
      300 Pasteur Dr, 
      Stanford, CA 
      Languages Spoken:
      English

      Svetlana Yatsenko is a Medical Genetics provider in Stanford, California. Dr. Yatsenko is rated as an Experienced provider by MediFind in the treatment of Acheiropody. Her top areas of expertise are Mosaicism, Turner Syndrome, 46XX Testicular Disorder of Sex Development, Intersex, and Hormone Replacement Therapy (HRT).

      Experienced in Acheiropody
      Pediatrics | Medical Genetics
      Experienced in Acheiropody
      Pediatrics | Medical Genetics
      6701 Fannin St, 
      Houston, TX 
      Languages Spoken:
      English

      Bret Bostwick is a Pediatrics specialist and a Medical Genetics provider in Houston, Texas. Dr. Bostwick is rated as an Experienced provider by MediFind in the treatment of Acheiropody. His top areas of expertise are Learman Syndrome, Micrognathia, Acheiropody, and Meier-Gorlin Syndrome.

      Experienced in Acheiropody
      Medical Genetics
      Experienced in Acheiropody
      Medical Genetics

      University Of Alabama Health Services Foundation, PC

      2000 6th Ave S, 
      Birmingham, AL 
      Languages Spoken:
      English
      Accepting New Patients

      Nathaniel Robin is a Medical Genetics provider in Birmingham, Alabama. Dr. Robin is rated as an Experienced provider by MediFind in the treatment of Acheiropody. His top areas of expertise are Trisomy 18, Coffin-Lowry Syndrome, 1p36 Deletion Syndrome, Stickler Syndrome, and Orchiectomy. Dr. Robin is currently accepting new patients.

      Experienced in Acheiropody
      Pediatrics | Medical Genetics
      Experienced in Acheiropody
      Pediatrics | Medical Genetics
      34th & Civic Center Boulevard, 9nw55, Chop-pediatric/medical Genetics Residency Program, 
      Philadelphia, PA 
      Languages Spoken:
      English

      Louise Pyle is a Pediatrics specialist and a Medical Genetics provider in Philadelphia, Pennsylvania. Dr. Pyle is rated as an Experienced provider by MediFind in the treatment of Acheiropody. Her top areas of expertise are Intersex, CHARGE Syndrome, Penis Agenesis, and Klinefelter Syndrome.

      Showing 1-20 of 32

      Last Updated: 10/30/2025

      What is the definition of Acheiropody?

      Acheiropody is a very rare condition characterized by bilateral, congenital amputations of the hands and feet. Individuals with this condition are born with complete amputation of the distal humeral epiphysis (end of the upper arm bone) and tibial diaphysis (mid-section of the shin bone), and aplasia (lack of development) of the radius, ulna, fibula, and of all the bones of the hands and feet. The condition appears to affect only the extremities, with no other signs and symptoms reported. It is caused by a defect in the LMBR1 gene and is inherited in an autosomal recessive manner.

      When should I see an Acheiropody doctor in The United States?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an Acheiropody doctor in The United States?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Acheiropody doctors in The United States?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Acheiropody doctors in The United States?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an Acheiropody doctor in The United States?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Acheiropody doctor search results page. 

      Why is it important to get a second opinion from a different Acheiropody doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an Acheiropody doctor in The United States?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Acheiropody doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Acheiropody doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Acheiropody doctors in The United States?

      Look for the filter feature on the left side of the Acheiropody doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an Acheiropody doctor that offers video calls?

      Look for the filter feature on the left-side of the Acheiropody doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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