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    Last Updated: 02/22/2026

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    MediFind found 32 doctor with experience in Acrofrontofacionasal Dysostosis Syndrome near Hesse, DE. Of these, 31 are Experienced and 1 are Distinguished.

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    32 providers found
      Distinguished in Acrofrontofacionasal Dysostosis Syndrome

      Ute Hehr
      Distinguished in Acrofrontofacionasal Dysostosis Syndrome

      Ute Hehr
      Franz Josef Strauss Allee 11, 
      Regensburg, BY, DE 

      Ute Hehr practices in Regensburg, Germany. Ms. Hehr is rated as a Distinguished expert by MediFind in the treatment of Acrofrontofacionasal Dysostosis Syndrome. Her top areas of expertise are Agyria Pachygyria Polymicrogyria, Lissencephaly, Acrofrontofacionasal Dysostosis Syndrome, and Treacher Collins Syndrome.

      Experienced in Acrofrontofacionasal Dysostosis Syndrome

      Elisabeth Hofmann
      Experienced in Acrofrontofacionasal Dysostosis Syndrome

      Elisabeth Hofmann
      Franz Josef Strauss Allee 11, 
      Regensburg, BY, DE 

      Elisabeth Hofmann practices in Regensburg, Germany. Ms. Hofmann is rated as an Experienced expert by MediFind in the treatment of Acrofrontofacionasal Dysostosis Syndrome. Her top areas of expertise are Goldenhar Disease, Treacher Collins Syndrome, Acrofrontofacionasal Dysostosis Syndrome, and Acrofacial Dysostosis Rodriguez Type.

      Experienced in Acrofrontofacionasal Dysostosis Syndrome

      Ursula Hirschfelder
      Experienced in Acrofrontofacionasal Dysostosis Syndrome

      Ursula Hirschfelder
      Erlangen, BY, DE 

      Ursula Hirschfelder practices in Erlangen, Germany. Ms. Hirschfelder is rated as an Experienced expert by MediFind in the treatment of Acrofrontofacionasal Dysostosis Syndrome. Her top areas of expertise are Goldenhar Disease, Treacher Collins Syndrome, Acrofrontofacionasal Dysostosis Syndrome, and Acrofacial Dysostosis Rodriguez Type.

      Learn about our expert tiers
      Experienced in Acrofrontofacionasal Dysostosis Syndrome

      Sibylle Sabrautzki
      Experienced in Acrofrontofacionasal Dysostosis Syndrome

      Sibylle Sabrautzki
      Neuherberg, BY, DE 

      Sibylle Sabrautzki practices in Neuherberg, Germany. Sabrautzki is rated as an Experienced expert by MediFind in the treatment of Acrofrontofacionasal Dysostosis Syndrome. Their top areas of expertise are Coloboma of Optic Nerve, Micrognathia, Coloboma of Optic Papilla, and Congenital Cataract.

      Experienced in Acrofrontofacionasal Dysostosis Syndrome

      Michael A. Sandholzer
      Experienced in Acrofrontofacionasal Dysostosis Syndrome

      Michael A. Sandholzer
      Munich, BY, DE 

      Michael Sandholzer practices in Munich, Germany. Mr. Sandholzer is rated as an Experienced expert by MediFind in the treatment of Acrofrontofacionasal Dysostosis Syndrome. His top areas of expertise are Micrognathia, Paget's Disease of Bone, Acrofrontofacionasal Dysostosis Syndrome, and Treacher Collins Syndrome.

      Experienced in Acrofrontofacionasal Dysostosis Syndrome

      Helmut Fuchs
      Experienced in Acrofrontofacionasal Dysostosis Syndrome

      Helmut Fuchs
      Neuherberg, BY, DE 

      Helmut Fuchs practices in Neuherberg, Germany. Mr. Fuchs is rated as an Experienced expert by MediFind in the treatment of Acrofrontofacionasal Dysostosis Syndrome. His top areas of expertise are Hyperlysinemia, Allan-Herndon-Dudley Syndrome, Restless Legs Syndrome, and Coloboma of Optic Nerve.

      Experienced in Acrofrontofacionasal Dysostosis Syndrome

      Jochen Wurm
      Experienced in Acrofrontofacionasal Dysostosis Syndrome

      Jochen Wurm
      Head & Neck Surgery, Waldstrasse 1, 
      Erlangen, BY, DE 

      Jochen Wurm practices in Erlangen, Germany. Mr. Wurm is rated as an Experienced expert by MediFind in the treatment of Acrofrontofacionasal Dysostosis Syndrome. His top areas of expertise are Bloom Syndrome, Goldenhar Disease, Treacher Collins Syndrome, and Acrofrontofacionasal Dysostosis Syndrome.

      Experienced in Acrofrontofacionasal Dysostosis Syndrome

      Sabine M. Holter
      Experienced in Acrofrontofacionasal Dysostosis Syndrome

      Sabine M. Holter
      Neuherberg, BY, DE 

      Sabine Holter practices in Neuherberg, Germany. Ms. Holter is rated as an Experienced expert by MediFind in the treatment of Acrofrontofacionasal Dysostosis Syndrome. Her top areas of expertise are Xeroderma Pigmentosum, Restless Legs Syndrome, Spondyloepimetaphyseal Dysplasia Strudwick Type, and Autosomal Recessive Primary Microcephaly.

      Experienced in Acrofrontofacionasal Dysostosis Syndrome

      Wolfgang Wurst
      Experienced in Acrofrontofacionasal Dysostosis Syndrome

      Wolfgang Wurst
      Feodor Lynen Str. 17, 
      Munich, BY, DE 

      Wolfgang Wurst practices in Munich, Germany. Mr. Wurst is rated as an Experienced expert by MediFind in the treatment of Acrofrontofacionasal Dysostosis Syndrome. His top areas of expertise are Parkinson's Disease, Movement Disorders, Dementia, and Alzheimer's Disease.

      Experienced in Acrofrontofacionasal Dysostosis Syndrome

      Birgit Rathkolb
      Experienced in Acrofrontofacionasal Dysostosis Syndrome

      Birgit Rathkolb

      LMU Munich

      Munich, BY, DE 

      Birgit Rathkolb practices in Munich, Germany. Ms. Rathkolb is rated as an Experienced expert by MediFind in the treatment of Acrofrontofacionasal Dysostosis Syndrome. Her top areas of expertise are Laron Syndrome, Infant Hyperglycemia, Paget's Disease of Bone, and Type B Insulin Resistance Syndrome.

      Experienced in Acrofrontofacionasal Dysostosis Syndrome

      Susan Marschall
      Experienced in Acrofrontofacionasal Dysostosis Syndrome

      Susan Marschall
      Neuherberg, BY, DE 

      Susan Marschall practices in Neuherberg, Germany. Ms. Marschall is rated as an Experienced expert by MediFind in the treatment of Acrofrontofacionasal Dysostosis Syndrome. Her top areas of expertise are Hyperlysinemia, Micrognathia, Microcephaly Deafness Syndrome, and Dyskeratosis Congenita.

      Experienced in Acrofrontofacionasal Dysostosis Syndrome

      Jan Rozman
      Experienced in Acrofrontofacionasal Dysostosis Syndrome

      Jan Rozman
      Neuherberg, BY, DE 

      Jan Rozman practices in Neuherberg, Germany. Rozman is rated as an Experienced expert by MediFind in the treatment of Acrofrontofacionasal Dysostosis Syndrome. Their top areas of expertise are Paget's Disease of Bone, Type B Insulin Resistance Syndrome, Methylmalonic Acidemia, and Obesity.

      Experienced in Acrofrontofacionasal Dysostosis Syndrome

      Wolfgang Hans
      Experienced in Acrofrontofacionasal Dysostosis Syndrome

      Wolfgang Hans
      Neuherberg, BY, DE 

      Wolfgang Hans practices in Neuherberg, Germany. Mr. Hans is rated as an Experienced expert by MediFind in the treatment of Acrofrontofacionasal Dysostosis Syndrome. His top areas of expertise are Osteopathia Striata Cranial Sclerosis, Paget's Disease of Bone, Cholestasis, and Micrognathia.

      Experienced in Acrofrontofacionasal Dysostosis Syndrome

      Tim M. Strom
      Experienced in Acrofrontofacionasal Dysostosis Syndrome

      Tim M. Strom
      Munich, BY, DE 

      Tim Strom practices in Munich, Germany. Mr. Strom is rated as an Experienced expert by MediFind in the treatment of Acrofrontofacionasal Dysostosis Syndrome. His top areas of expertise are Microcephaly, Achalasia Microcephaly Syndrome, Lethal Congenital Contracture Syndrome, Lactic Acidosis, and Kidney Transplant.

      Experienced in Acrofrontofacionasal Dysostosis Syndrome

      Juliane W. Winkelmann
      Experienced in Acrofrontofacionasal Dysostosis Syndrome

      Juliane W. Winkelmann
      Munich, BY, DE 

      Juliane Winkelmann practices in Munich, Germany. Ms. Winkelmann is rated as an Experienced expert by MediFind in the treatment of Acrofrontofacionasal Dysostosis Syndrome. Her top areas of expertise are Restless Legs Syndrome, Drug Induced Dyskinesia, Movement Disorders, Focal Dystonia, and Deep Brain Stimulation.

      Experienced in Acrofrontofacionasal Dysostosis Syndrome

      Johannes Prottengeier
      Experienced in Acrofrontofacionasal Dysostosis Syndrome

      Johannes Prottengeier
      Erlangen, BY, DE 

      Johannes Prottengeier practices in Erlangen, Germany. Mr. Prottengeier is rated as an Experienced expert by MediFind in the treatment of Acrofrontofacionasal Dysostosis Syndrome. His top areas of expertise are Bloom Syndrome, Cramp-Fasciculation Syndrome, Headache, and Goldenhar Disease.

      Experienced in Acrofrontofacionasal Dysostosis Syndrome

      Bettina Depiereux-Lorenz
      Experienced in Acrofrontofacionasal Dysostosis Syndrome

      Bettina Depiereux-Lorenz
      Neuherberg, BY, DE 

      Bettina Depiereux-Lorenz practices in Neuherberg, Germany. Ms. Depiereux-Lorenz is rated as an Experienced expert by MediFind in the treatment of Acrofrontofacionasal Dysostosis Syndrome. Her top areas of expertise are Hypophosphatemia, X-Linked Hypophosphatemia, Rickets, and Severe Acute Respiratory Syndrome (SARS).

      Experienced in Acrofrontofacionasal Dysostosis Syndrome

      Gerhard H. Przemeck
      Experienced in Acrofrontofacionasal Dysostosis Syndrome

      Gerhard H. Przemeck
      Neuherberg, BY, DE 

      Gerhard Przemeck practices in Neuherberg, Germany. Mr. Przemeck is rated as an Experienced expert by MediFind in the treatment of Acrofrontofacionasal Dysostosis Syndrome. His top areas of expertise are Coloboma of Optic Nerve, Micrognathia, Coloboma of Optic Papilla, and Retinopathy Pigmentary Mental Retardation.

      Experienced in Acrofrontofacionasal Dysostosis Syndrome

      Andreas W. Detterbeck
      Experienced in Acrofrontofacionasal Dysostosis Syndrome

      Andreas W. Detterbeck
      Kieferorthopädie Bogen Dr. Andreas Detterbeck, Wittelsbacherstr. 17, 
      Bogen, BY, DE 

      Andreas Detterbeck practices in Bogen, Germany. Mr. Detterbeck is rated as an Experienced expert by MediFind in the treatment of Acrofrontofacionasal Dysostosis Syndrome. His top areas of expertise are Goldenhar Disease, Acrofacial Dysostosis Rodriguez Type, Treacher Collins Syndrome, and Acrofrontofacionasal Dysostosis Syndrome.

      Experienced in Acrofrontofacionasal Dysostosis Syndrome

      Claudia Stoeger
      Experienced in Acrofrontofacionasal Dysostosis Syndrome

      Claudia Stoeger
      Neuherberg, BY, DE 

      Claudia Stoeger practices in Neuherberg, Germany. Ms. Stoeger is rated as an Experienced expert by MediFind in the treatment of Acrofrontofacionasal Dysostosis Syndrome. Her top areas of expertise are Micrognathia, Paget's Disease of Bone, Acrofrontofacionasal Dysostosis Syndrome, and Treacher Collins Syndrome.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 32

      Last Updated: 02/22/2026

      When should I see an Acrofrontofacionasal Dysostosis Syndrome doctor in Hesse, DE?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an Acrofrontofacionasal Dysostosis Syndrome doctor in Hesse, DE?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best Acrofrontofacionasal Dysostosis Syndrome doctor in Hesse, DE?

      You can find an Acrofrontofacionasal Dysostosis Syndrome doctor in any of the 10 largest U.S. cities by clicking below:

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      How does MediFind rank Acrofrontofacionasal Dysostosis Syndrome doctors in Hesse, DE?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Acrofrontofacionasal Dysostosis Syndrome doctors in Hesse, DE?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an Acrofrontofacionasal Dysostosis Syndrome doctor in Hesse, DE?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Acrofrontofacionasal Dysostosis Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Acrofrontofacionasal Dysostosis Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an Acrofrontofacionasal Dysostosis Syndrome doctor in Hesse, DE?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Acrofrontofacionasal Dysostosis Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Acrofrontofacionasal Dysostosis Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Acrofrontofacionasal Dysostosis Syndrome doctors in Hesse, DE?

      Look for the filter feature on the left side of the Acrofrontofacionasal Dysostosis Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an Acrofrontofacionasal Dysostosis Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Acrofrontofacionasal Dysostosis Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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