Acrokeratoelastoidosis of Costa Overview
Learn About Acrokeratoelastoidosis of Costa
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However, there may be experts who have treated this or similar conditions in our Find a Doctor section and research may be available in our Latest Advances section.
Alain Hovnanian practices in Paris, France. Mr. Hovnanian is rated as an Elite expert by MediFind in the treatment of Acrokeratoelastoidosis of Costa. His top areas of expertise are Netherton Syndrome, Dystrophic Epidermolysis Bullosa, Olmsted Syndrome, and Epidermolysis Bullosa.
Toshinari Miyauchi practices in Sapporo, Japan. Miyauchi is rated as an Elite expert by MediFind in the treatment of Acrokeratoelastoidosis of Costa. Their top areas of expertise are Acrokeratoelastoidosis of Costa, Palmoplantar Keratoderma, Epidermolytic Hyperkeratosis, and Nonbullous Congenital Ichthyosiform Erythroderma.
Hiroshi Shimizu practices in Sapporo, Japan. Mr. Shimizu is rated as an Elite expert by MediFind in the treatment of Acrokeratoelastoidosis of Costa. His top areas of expertise are Bullous Pemphigoid, Bullae, Epidermolysis Bullosa, Pancreaticoduodenectomy, and Embolectomy.
Summary: The goal of this observational study is to understand the perspectives and needs of patients with genodermatoses and their partners who wish to have children, regarding their decision-making process and their consideration of reproductive options. Additionally, the investigators aim to investigate the level of knowledge and perspectives of healthcare professionals (such as clinical geneticists, de...
Summary: The goal of this observational study is to conduct a prospective assessment of the individual Burden of 9 rare skin diseases to assess disability in the broadest sense of the term (psychological, social, economic and physical) for patients and/or families. Two types of indicators will be used to reach this objective : 1. an individual burden score calculated based on a burden questionnaire created...