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    Last Updated: 01/09/2026

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    MediFind found 9 doctor with experience in Adrenoleukodystrophy (ALD) near Maryland, US. Of these, 5 are Experienced, 2 are Elite, 1 are Advanced and 1 are Distinguished.

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    9 providers found
      Gerald V. Raymond
      Elite in Adrenoleukodystrophy (ALD)
      Pediatrics | Medical Genetics
      Elite in Adrenoleukodystrophy (ALD)
      Pediatrics | Medical Genetics

      Rubenstein Child Health Building

      Baltimore, MD 
      Languages Spoken:
      English

      Dr. Gerald Raymond is a clinical geneticist and neurologist at Johns Hopkins where he is also a professor of genetic medicine and neurology. He obtained his MD at the University of Connecticut and was trained in Pediatrics at Johns Hopkins Hospital and Neurology at the Mass. General Hospital. He received additional training in developmental neuropathology at the Universite Catholique de Louvain in Belgium and clinical genetics at the Harvard Program. Dr. Raymond’s research has been at the overlap of genetics and neurology with specific focus on peroxisomal disorders including adrenoleukodystrophy. He has been actively involved in newborn screening for ALD and in developing clinical follow-up programs. He has extensive experience in clinical management of neurogenetic issues including peroxisomal and lysosomal disorders. He presently serves as the Director of the Lysosomal Storage Disease program in the department of Genetic Medicine. Dr. Raymond is rated as an Elite provider by MediFind in the treatment of Adrenoleukodystrophy (ALD). His top areas of expertise are Adrenoleukodystrophy (ALD), CACH Syndrome, Zellweger Syndrome, and Leukodystrophy.

      Elite in Adrenoleukodystrophy (ALD)
      Pediatric Neurology | Neurology | Pediatrics
      Elite in Adrenoleukodystrophy (ALD)
      Pediatric Neurology | Neurology | Pediatrics

      Kennedy Krieger Institute

      707 North Broadway, 
      Baltimore, MD 
      Languages Spoken:
      English

      Eric Mallack is a Pediatric Neurologist and a Neurologist in Baltimore, Maryland. Dr. Mallack is rated as an Elite provider by MediFind in the treatment of Adrenoleukodystrophy (ALD). His top areas of expertise are Adrenoleukodystrophy (ALD), CACH Syndrome, Early Infantile Epileptic Encephalopathy, and Leukodystrophy.

      Ali Fatemi
      Distinguished in Adrenoleukodystrophy (ALD)
      Pediatric Neurology
      Distinguished in Adrenoleukodystrophy (ALD)
      Pediatric Neurology

      Kennedy Krieger Institute

      707 North Broadway, Neurology Department, Neurology Department, 
      Baltimore, MD 
      Languages Spoken:
      English, Arabic, Farsi, German

      Dr. Fatemi received his medical degree from the Medical University of Vienna, Austria in 1999. After graduation, he served as a researcher and lecturer at the Institute for Medical Chemistry in Vienna and at the Department of Pediatrics at the Vienna General Hospital. He then moved to the United States to pursue a postdoctoral fellowship in neurogenetics and neuroimaging at Johns Hopkins University School of Medicine in 2001. During this initial period, Dr. Fatemi collaborated with a team of scientists and developed new imaging methods in patients with leukodystrophies (rare genetic diseases that affect the brain's white matter) and coordinated an internet-2 based imaging network for these diseases. He then left Kennedy Krieger Institute to train in general pediatrics and then completed a child neurology residency at the Massachusetts General Hospital, an affiliate of Harvard Medical School. Dr. Fatemi returned to the Kennedy Krieger Institute in 2008 as faculty. He is a member of the Child Neurology Society, the International Child Neurology Association, the Society for Neuroscience, the American Academy of Neurology and the International Society for Magnetic Resonance in Medicine. He has served as ad hoc reviewer for the Journals Child Development and American Journal of Neuroradiology. Dr. Fatemi is rated as a Distinguished provider by MediFind in the treatment of Adrenoleukodystrophy (ALD). His top areas of expertise are Adrenoleukodystrophy (ALD), CACH Syndrome, Canavan Disease, and Leukodystrophy.

      Learn about our expert tiers
      Advanced in Adrenoleukodystrophy (ALD)
      Advanced in Adrenoleukodystrophy (ALD)

      Kennedy Krieger Associates

      707 N Broadway, 
      Baltimore, MD 
      Languages Spoken:
      English

      Amena Fine is a Pediatrics provider in Baltimore, Maryland. Dr. Fine is rated as an Advanced provider by MediFind in the treatment of Adrenoleukodystrophy (ALD). Her top areas of expertise are Adrenoleukodystrophy (ALD), CACH Syndrome, HNRNPH2-Related Disorder, and Leukodystrophy.

      Aniket Sidhaye
      Experienced in Adrenoleukodystrophy (ALD)
      Endocrinology
      Experienced in Adrenoleukodystrophy (ALD)
      Endocrinology

      Mount Washington Pediatric Hospital

      Baltimore, MD 
      Languages Spoken:
      English, Hindi, Marathi
      Offers Telehealth

      Dr. Aniket Sidhaye is an assistant professor of medicine and pediatrics at the Johns Hopkins University School of Medicine. His specific clinical interests are cystic fibrosis related endocrine disorders, type 1 diabetes mellitus particularly emerging adults with diabetes, thyroid disorders, metabolic bone disease, and management of hospitalized persons with diabetes. Dr. Sidhaye earned his M.D. from Northwestern University’s Feinberg School of Medicine. He completed his residency at Northwestern University. He performed a research fellowship in endocrinology and metabolism at Northwestern University and also performed fellowships in endocrinology and metabolism at Johns Hopkins. His research interests include CF related diabetes, bone health of CF patients after lung transplant, and the care of emerging adults with type 1 diabetes. In addition, he is a committed educator serving as an advisor in the medical school, co-director for the endocrine course for pre-clinical medical students, and program director for our endocrine fellowship. Dr. Sidhaye is rated as an Experienced provider by MediFind in the treatment of Adrenoleukodystrophy (ALD). His top areas of expertise are Type B Insulin Resistance Syndrome, Type 1 Diabetes (T1D), Type 2 Diabetes (T2D), and Paget's Disease of Bone.

      Ellen Mowry
      Experienced in Adrenoleukodystrophy (ALD)
      Neurology
      Experienced in Adrenoleukodystrophy (ALD)
      Neurology

      Johns Hopkins Outpatient Center

      601 North Caroline Street, Floor 5, Floor 5, 
      Baltimore, MD 
      Languages Spoken:
      English

      Dr. Mowry became interested in multiple sclerosis (MS) prior to beginning college and first performed MS research as an undergraduate biology major at Georgetown University. As a neurology resident at the University of Pennsylvania, she began her multiple sclerosis clinical research activities in conducting a study of visual dysfunction and quality of life in multiple sclerosis. During her fellowship at UCSF, Dr. Mowry evaluated prognostic factors in multiple sclerosis and examined health-related quality of life in multiple sclerosis, particularly as a marker of disease burden. She also earned a Master’s Degree in Clinical Research at UCSF. Dr. Mowry continued as a member of the faculty there before joining the Johns Hopkins Department of Neurology as an Assistant Professor in July, 2011; she received a joint appointment in Epidemiology in 2013. She was appointed as the inaugural Richard T. and Frances W. Johnson Professor in 2022. Over the past several years, Dr. Mowry has worked primarily to perform epidemiologic investigations of multiple sclerosis (MS) risk and prognostic factors and has evaluated both genetic and environmental contributors. While she has had a major role in several such studies, her most significant work led to the identification of the association of vitamin D status with relapse and brain lesion risk in patients with MS (Annals of Neurology 2010, Annals of Neurology 2012, European Journal of Neurology 2015). She also conducted the first pilot study comparing gut bacterial populations in patients with MS and healthy individuals (Journal of Investigative Medicine 2014). She was recently funded to investigate the impact of vitamin D supplementation on the metabolomics profile in patients with MS compared to healthy controls. She enjoys designing and conducting clinical trials in MS and is the Principal Investigator of the Vitamin D to Ameliorate Multiple Sclerosis (VIDAMS) multicenter vitamin D trial (NCT01490502), which is sponsored by the National MS Society and a smaller multicenter pilot study investigating vitamin D pharmacokinetics in MS patients and healthy controls (NCT01667796). She is also the recipient of a Harry Weaver Award from the National MS Society, in which she is investigating the impact of intermittent calorie restriction in MS. Finally, as Director of the MS Experimental Therapeutics Program at Johns Hopkins, she assists colleagues with study design and helps oversee the conduct of MS clinical trials. Dr. Mowry is rated as an Experienced provider by MediFind in the treatment of Adrenoleukodystrophy (ALD). Her top areas of expertise are Multiple Sclerosis (MS), Relapsing Multiple Sclerosis (RMS), Optic Neuritis, and Neuromyelitis Optica.

      Experienced in Adrenoleukodystrophy (ALD)
      Medical Genetics | Pediatrics
      Experienced in Adrenoleukodystrophy (ALD)
      Medical Genetics | Pediatrics
      601 N Caroline St, 
      Baltimore, MD 
      Languages Spoken:
      English

      Nancy Braverman is a Medical Genetics specialist and a Pediatrics provider in Baltimore, Maryland. Dr. Braverman is rated as an Experienced provider by MediFind in the treatment of Adrenoleukodystrophy (ALD). Her top areas of expertise are Zellweger Syndrome, Chondrodysplasia Punctata Syndrome, X-Linked Chondrodysplasia Punctata 2, and Acromesomelic Dysplasia.

      Experienced in Adrenoleukodystrophy (ALD)
      Medical Genetics
      Experienced in Adrenoleukodystrophy (ALD)
      Medical Genetics
      Kennedy Krieger Institute, 707 N Broadway Rm 526, 
      Baltimore, MD 
      Languages Spoken:
      English

      Suzette Huguenin is a Medical Genetics provider in Baltimore, Maryland. Dr. Huguenin is rated as an Experienced provider by MediFind in the treatment of Adrenoleukodystrophy (ALD). Her top areas of expertise are Zellweger Syndrome and Adrenoleukodystrophy (ALD).

      Experienced in Adrenoleukodystrophy (ALD)
      Experienced in Adrenoleukodystrophy (ALD)
      707 N. Broadway, 
      Baltimore, MD 
      Languages Spoken:
      English

      Sakkubai Naidu is a Neurologist in Baltimore, Maryland. Dr. Naidu is rated as an Experienced provider by MediFind in the treatment of Adrenoleukodystrophy (ALD). Her top areas of expertise are Rett Syndrome, Leukodystrophy, CACH Syndrome, and Hypotonia.

      Showing 1-9 of 9

      Last Updated: 01/09/2026

      What is the definition of Adrenoleukodystrophy (ALD)?

      Adrenoleukodystrophy (ALD) describes several closely related disorders that disrupt the breakdown of certain fats. These disorders are often passed down (inherited) in families.

      When should I see an Adrenoleukodystrophy (ALD) doctor in Maryland, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an Adrenoleukodystrophy (ALD) doctor in Maryland, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Adrenoleukodystrophy (ALD) doctors in Maryland, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Adrenoleukodystrophy (ALD) doctors in Maryland, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an Adrenoleukodystrophy (ALD) doctor in Maryland, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Adrenoleukodystrophy (ALD) doctor search results page. 

      Why is it important to get a second opinion from a different Adrenoleukodystrophy (ALD) doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an Adrenoleukodystrophy (ALD) doctor in Maryland, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Adrenoleukodystrophy (ALD) doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Adrenoleukodystrophy (ALD) doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Adrenoleukodystrophy (ALD) doctors in Maryland, US?

      Look for the filter feature on the left side of the Adrenoleukodystrophy (ALD) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an Adrenoleukodystrophy (ALD) doctor that offers video calls?

      Look for the filter feature on the left-side of the Adrenoleukodystrophy (ALD) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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